Health-related quality of life in rare bleeding disorders: results from the Rare Bleeding Disorders in the Netherlands study

Health-related quality of life in rare bleeding disorders: results from the Rare Bleeding Disorders in the Netherlands study

Background: Clinical bleeding phenotype varies substantially among patients with rare bleeding disorders (RBDs). Patient-reported outcomes may provide valuable insights into health-related quality of life (HRQoL) and disease burden. Objectives: To evaluate HRQoL in patients with rare coagulation fac...

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Main Authors: Sterre P.E. Willems, Marjon H. Cnossen, Nick van Es, Paul L. den Exter, Ilmar C. Kruis, Karina Meijer, Laurens Nieuwenhuizen, Joline L. Saes, Nicole M.A. Blijlevens, Waander L. van Heerde, Saskia E.M. Schols
Format: Article
Language:English
Published: Elsevier 2025-07-01
Series:Research and Practice in Thrombosis and Haemostasis
Subjects:
blood coagulation disorders
hemorrhagic disorders
menorrhagia
patient reported outcome measures
phenotype
quality of life
Online Access:http://www.sciencedirect.com/science/article/pii/S2475037925002857
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