“Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts
This paper proposes a discourse-oriented approach to genetic literacy. The increased availability of genetic testing requires a certain level of genetic literacy among the public. This is important to understand the benefits and the risks of genetic testing. In this paper, we suggest that genetic li...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | New Genetics and Society |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/14636778.2024.2435832 |
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| _version_ | 1846126606675869696 |
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| author | Zhengpeng Luo Olga Zayts-Spence |
| author_facet | Zhengpeng Luo Olga Zayts-Spence |
| author_sort | Zhengpeng Luo |
| collection | DOAJ |
| description | This paper proposes a discourse-oriented approach to genetic literacy. The increased availability of genetic testing requires a certain level of genetic literacy among the public. This is important to understand the benefits and the risks of genetic testing. In this paper, we suggest that genetic literacy is not just a set of knowledge and skills that people have, but something that they do. It is discursively accomplished, and socially and culturally constitutive. We illustrate our approach using a genetic counseling consultation for Sudden Arrhythmic Death Syndrome (SADS). We examine how in this consultation, through careful orientation to the clients’ understanding of genetic information, extended explanation-giving and education on genetics, the geneticist supports the clients in their decision about genetic testing. We discuss our findings in relation to clinical and non-clinical genetic contexts and highlight the importance of genetic literacy and professional support in diverse situations where genetic testing is considered. |
| format | Article |
| id | doaj-art-dd7e2c7cafa74d1bb3e5bbe71615c340 |
| institution | Kabale University |
| issn | 1463-6778 1469-9915 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | New Genetics and Society |
| spelling | doaj-art-dd7e2c7cafa74d1bb3e5bbe71615c3402024-12-12T15:09:29ZengTaylor & Francis GroupNew Genetics and Society1463-67781469-99152024-12-0143110.1080/14636778.2024.2435832“Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contextsZhengpeng Luo0Olga Zayts-Spence1School of Foreign Languages, Peking University, Beijing, People’s Republic of ChinaSchool of English, The University of Hong Kong, Hong Kong SAR, People’s Republic of ChinaThis paper proposes a discourse-oriented approach to genetic literacy. The increased availability of genetic testing requires a certain level of genetic literacy among the public. This is important to understand the benefits and the risks of genetic testing. In this paper, we suggest that genetic literacy is not just a set of knowledge and skills that people have, but something that they do. It is discursively accomplished, and socially and culturally constitutive. We illustrate our approach using a genetic counseling consultation for Sudden Arrhythmic Death Syndrome (SADS). We examine how in this consultation, through careful orientation to the clients’ understanding of genetic information, extended explanation-giving and education on genetics, the geneticist supports the clients in their decision about genetic testing. We discuss our findings in relation to clinical and non-clinical genetic contexts and highlight the importance of genetic literacy and professional support in diverse situations where genetic testing is considered.https://www.tandfonline.com/doi/10.1080/14636778.2024.2435832Genetic literacygenetic counselingdiscourse |
| spellingShingle | Zhengpeng Luo Olga Zayts-Spence “Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts New Genetics and Society Genetic literacy genetic counseling discourse |
| title | “Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts |
| title_full | “Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts |
| title_fullStr | “Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts |
| title_full_unstemmed | “Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts |
| title_short | “Doing genetic literacy”: a discourse-oriented approach to literacy in genetic contexts |
| title_sort | doing genetic literacy a discourse oriented approach to literacy in genetic contexts |
| topic | Genetic literacy genetic counseling discourse |
| url | https://www.tandfonline.com/doi/10.1080/14636778.2024.2435832 |
| work_keys_str_mv | AT zhengpengluo doinggeneticliteracyadiscourseorientedapproachtoliteracyingeneticcontexts AT olgazaytsspence doinggeneticliteracyadiscourseorientedapproachtoliteracyingeneticcontexts |