Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia

BackgroundUNC13D deficiency is the most common form of familial hemophagocytic lymphohistiocytosis (FHL) in Asia. Hypogammaglobulinemia is a rare phenotype observed in both patients with FHL3 and sporadic hemophagocytic lymphohistiocytosis (HLH). Our observations suggest that UNC13D deficiency with...

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Main Authors: Linyan Xiong, Qin Zhao, Qian Zhao, Zhiyong Zhang, Yunfei An, Xuemei Tang, Hirokazu Kanegane, Xi Yang, Xiaodong Zhao
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-08-01
Series:Frontiers in Immunology
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Online Access:https://www.frontiersin.org/articles/10.3389/fimmu.2025.1628507/full
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author Linyan Xiong
Linyan Xiong
Linyan Xiong
Linyan Xiong
Qin Zhao
Qin Zhao
Qin Zhao
Qian Zhao
Qian Zhao
Qian Zhao
Zhiyong Zhang
Zhiyong Zhang
Zhiyong Zhang
Zhiyong Zhang
Yunfei An
Yunfei An
Yunfei An
Yunfei An
Xuemei Tang
Xuemei Tang
Xuemei Tang
Xuemei Tang
Hirokazu Kanegane
Xi Yang
Xi Yang
Xi Yang
Xi Yang
Xiaodong Zhao
Xiaodong Zhao
Xiaodong Zhao
Xiaodong Zhao
author_facet Linyan Xiong
Linyan Xiong
Linyan Xiong
Linyan Xiong
Qin Zhao
Qin Zhao
Qin Zhao
Qian Zhao
Qian Zhao
Qian Zhao
Zhiyong Zhang
Zhiyong Zhang
Zhiyong Zhang
Zhiyong Zhang
Yunfei An
Yunfei An
Yunfei An
Yunfei An
Xuemei Tang
Xuemei Tang
Xuemei Tang
Xuemei Tang
Hirokazu Kanegane
Xi Yang
Xi Yang
Xi Yang
Xi Yang
Xiaodong Zhao
Xiaodong Zhao
Xiaodong Zhao
Xiaodong Zhao
author_sort Linyan Xiong
collection DOAJ
description BackgroundUNC13D deficiency is the most common form of familial hemophagocytic lymphohistiocytosis (FHL) in Asia. Hypogammaglobulinemia is a rare phenotype observed in both patients with FHL3 and sporadic hemophagocytic lymphohistiocytosis (HLH). Our observations suggest that UNC13D deficiency with hypogammaglobulinemia presents a distinct clinical phenotype compared to other HLH patients. This finding provides valuable clinical insights and may contribute to a more comprehensive understanding of the disease, highlighting the need for further investigation into its genetic and clinical characteristics.MethodsWe retrospectively analyzed the clinical features of five patients with UNC13D deficiency with hypogammaglobulinemia at our center, along with a literature review. The clinical findings were then compared with those of sporadic HLH patients presenting with hypogammaglobulinemia.ResultsAll patients experienced respiratory infections, with two patients showing recurrent episodes. Seizures were observed in 75% of the patients. HLH-related biomarkers were present in all patients. The four patients who did not undergo allogeneic hematopoietic stem cell transplantation (HSCT), all died. Eight variant sites were identified, with 25% located in exon 9 and another 25% in exon 20. The majority (66.67%) of the variants were found in the region responsible for interaction with RAB27α. UNC13D deficiency with hypogammaglobulinemia was associated with a higher frequency of respiratory manifestations, neurological involvement, and an increased mortality rate.ConclusionsOur study presents the first comprehensive description of the clinical features of UNC13D deficiency with hypogammaglobulinemia. Patients with this condition tend to exhibit more severe clinical manifestations and a poorer prognosis. Allogeneic HSCT may help mitigate immune dysregulation.
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spelling doaj-art-cfbfcf1c87dc4f98ac8518fca54ea9a72025-08-20T03:44:04ZengFrontiers Media S.A.Frontiers in Immunology1664-32242025-08-011610.3389/fimmu.2025.16285071628507Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemiaLinyan Xiong0Linyan Xiong1Linyan Xiong2Linyan Xiong3Qin Zhao4Qin Zhao5Qin Zhao6Qian Zhao7Qian Zhao8Qian Zhao9Zhiyong Zhang10Zhiyong Zhang11Zhiyong Zhang12Zhiyong Zhang13Yunfei An14Yunfei An15Yunfei An16Yunfei An17Xuemei Tang18Xuemei Tang19Xuemei Tang20Xuemei Tang21Hirokazu Kanegane22Xi Yang23Xi Yang24Xi Yang25Xi Yang26Xiaodong Zhao27Xiaodong Zhao28Xiaodong Zhao29Xiaodong Zhao30Department of Rheumatology and Immunology, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaDepartment of Rheumatology and Immunology, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaDepartment of Rheumatology and Immunology, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaDepartment of Rheumatology and Immunology, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaDepartment of Child Health and Development, Graduate School of Medical and Dental Science, Tokyo Medical and Dental University (TMDU), Tokyo, JapanDepartment of Rheumatology and Immunology, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaDepartment of Rheumatology and Immunology, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaNational Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChina International Science and Technology Cooperation Base of Child Development and Critical Disorders, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaChongqing Key Laboratory of Child Rare Diseases in Infection and Immunity, Children’s Hospital of Chongqing Medical University, Chongqing, ChinaBackgroundUNC13D deficiency is the most common form of familial hemophagocytic lymphohistiocytosis (FHL) in Asia. Hypogammaglobulinemia is a rare phenotype observed in both patients with FHL3 and sporadic hemophagocytic lymphohistiocytosis (HLH). Our observations suggest that UNC13D deficiency with hypogammaglobulinemia presents a distinct clinical phenotype compared to other HLH patients. This finding provides valuable clinical insights and may contribute to a more comprehensive understanding of the disease, highlighting the need for further investigation into its genetic and clinical characteristics.MethodsWe retrospectively analyzed the clinical features of five patients with UNC13D deficiency with hypogammaglobulinemia at our center, along with a literature review. The clinical findings were then compared with those of sporadic HLH patients presenting with hypogammaglobulinemia.ResultsAll patients experienced respiratory infections, with two patients showing recurrent episodes. Seizures were observed in 75% of the patients. HLH-related biomarkers were present in all patients. The four patients who did not undergo allogeneic hematopoietic stem cell transplantation (HSCT), all died. Eight variant sites were identified, with 25% located in exon 9 and another 25% in exon 20. The majority (66.67%) of the variants were found in the region responsible for interaction with RAB27α. UNC13D deficiency with hypogammaglobulinemia was associated with a higher frequency of respiratory manifestations, neurological involvement, and an increased mortality rate.ConclusionsOur study presents the first comprehensive description of the clinical features of UNC13D deficiency with hypogammaglobulinemia. Patients with this condition tend to exhibit more severe clinical manifestations and a poorer prognosis. Allogeneic HSCT may help mitigate immune dysregulation.https://www.frontiersin.org/articles/10.3389/fimmu.2025.1628507/fullhemophagocytic lymphohistiocytosisfamilial hemophagocytic lymphohistiocytosisUNC13Dhypogammaglobulinemiaantibody deficiency
spellingShingle Linyan Xiong
Linyan Xiong
Linyan Xiong
Linyan Xiong
Qin Zhao
Qin Zhao
Qin Zhao
Qian Zhao
Qian Zhao
Qian Zhao
Zhiyong Zhang
Zhiyong Zhang
Zhiyong Zhang
Zhiyong Zhang
Yunfei An
Yunfei An
Yunfei An
Yunfei An
Xuemei Tang
Xuemei Tang
Xuemei Tang
Xuemei Tang
Hirokazu Kanegane
Xi Yang
Xi Yang
Xi Yang
Xi Yang
Xiaodong Zhao
Xiaodong Zhao
Xiaodong Zhao
Xiaodong Zhao
Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia
Frontiers in Immunology
hemophagocytic lymphohistiocytosis
familial hemophagocytic lymphohistiocytosis
UNC13D
hypogammaglobulinemia
antibody deficiency
title Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia
title_full Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia
title_fullStr Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia
title_full_unstemmed Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia
title_short Clinical and genetic features of UNC13D deficiency with hypogammaglobulinemia
title_sort clinical and genetic features of unc13d deficiency with hypogammaglobulinemia
topic hemophagocytic lymphohistiocytosis
familial hemophagocytic lymphohistiocytosis
UNC13D
hypogammaglobulinemia
antibody deficiency
url https://www.frontiersin.org/articles/10.3389/fimmu.2025.1628507/full
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