‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases

‘High hopes for treatment’: Australian stakeholder perspectives of the clinical translation of advanced neurotherapeutics for rare neurological diseases

Abstract Introduction Advanced therapies offer unprecedented opportunities for treating rare neurological disorders (RNDs) in children. However, health literacy, perceptions and understanding of novel therapies need elucidation across the RND community. This study explored healthcare professionals&#...

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Bibliographic Details
Main Authors: Christina Q. Nguyen, Didu S. T. Kariyawasam, Tsz Shun Jason Ngai, James Nguyen, Kristine Alba‐Concepcion, Sarah E. Grattan, Elizabeth E. Palmer, Kate Hetherington, Claire E. Wakefield, Russell C. Dale, Sue Woolfenden, Shekeeb Mohammad, Michelle A. Farrar
Format: Article
Language:English
Published: Wiley 2024-06-01
Series:Health Expectations
Subjects:
advanced therapeutics
clinical decision‐making
paediatric neurology
patient advocacy
precision medicine
rare diseases
Online Access:https://doi.org/10.1111/hex.14063
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https://doi.org/10.1111/hex.14063

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