“A torch, a rope, a belly laugh”: engaging with the multiple voices of support groups for people living with rare dementia

“A torch, a rope, a belly laugh”: engaging with the multiple voices of support groups for people living with rare dementia

PurposeRare forms of dementia bring unique difficulties related to age of onset, impact on family commitments, employment and finances, and also bring distinctive needs for support and care. The aim of the present study was to explore and better understand what the concept of support means for peopl...

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Bibliographic Details
Main Authors: Paul M. Camic, Emma Harding, Sam Rossi-Harries, Oliver S. Hayes, Mary Pat Sullivan, Lawrence Wilson, Nikki Zimmermann, Roberta McKee-Jackson, Joshua Stott, Nick C. Fox, Catherine J. Mummery, Jonathan D. Rohrer, Jason D. Warren, Rimona S. Weil, Sebastian James Crutch
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-01-01
Series:Frontiers in Dementia
Subjects:
support groups
non-memory led dementia
young onset dementia
research poetry
linguistic analysis
thematic analysis
Online Access:https://www.frontiersin.org/articles/10.3389/frdem.2024.1488025/full
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