Informatics Consideration on the Hierarchical System of Rare Diseases Clinical Care in China

The diagnosis and treatment resources for rare diseases in China are highly imbalanced. The basic diagnosis and treatment capabilities are weak, the diagnosis period for patients is long, and the rates of missed diagnosis and misdiagnosis are relatively high. The establishment of a hierarchical diag...

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Bibliographic Details
Main Authors: GONG Mengchun, GUO Yanying, ZHENG Xihong, FAN Junkang, LIU Peng, NIU Ling, YANG Yining, ZOU Xiaoguang
Format: Article
Language:zho
Published: Editorial Office of Journal of Rare Diseases 2024-10-01
Series:罕见病研究
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Online Access:https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2024.04.017
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