Development of a multi-level/multi-modal intervention for health care transition preparation
Aims: Health care transition (HCT) to adult care and young adult disease self-management is a multi-step process involving three major stakeholders – the adolescent, the caregiver, and the provider. Preparation gaps exist within each of these stakeholder groups. This paper presents the development o...
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| Format: | Article |
| Language: | English |
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Elsevier
2024-01-01
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| Series: | Health Care Transitions |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2949923224000230 |
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| author | Beth H. Garland Mary Majumder Constance M. Wiemann Blanca Sanchez-Fournier Jordyn Babla Albert C. Hergenroeder |
| author_facet | Beth H. Garland Mary Majumder Constance M. Wiemann Blanca Sanchez-Fournier Jordyn Babla Albert C. Hergenroeder |
| author_sort | Beth H. Garland |
| collection | DOAJ |
| description | Aims: Health care transition (HCT) to adult care and young adult disease self-management is a multi-step process involving three major stakeholders – the adolescent, the caregiver, and the provider. Preparation gaps exist within each of these stakeholder groups. This paper presents the development of the Intervention to Promote Autonomy and Competence in Transition-aged Youth (IPACT), a multi-level (adolescent, caregiver, provider), multi-modal (interactive skill building sessions, educational materials, videos) intervention to address gaps in all three stakeholder groups simultaneously and help support achieving the three core elements of HCT planning. Methods: Eight processes were utilized to develop the IPACT intervention, including reliance on existing literature and materials, stakeholder feedback at multiple points during development, and regular support and guidance from service liaisons within each of four tertiary-care clinics targeted for this intervention within a large, urban children’s hospital. Conclusions: IPACT includes the conceptual schema, logic model, intervention curriculum components, and implementation timeline. IPACT could be used by programs to simultaneously address gaps in stakeholder HCT planning knowledge and skills. |
| format | Article |
| id | doaj-art-8e33e8a9e99b4b99b0733f0c5f38d435 |
| institution | Kabale University |
| issn | 2949-9232 |
| language | English |
| publishDate | 2024-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Health Care Transitions |
| spelling | doaj-art-8e33e8a9e99b4b99b0733f0c5f38d4352024-11-30T07:14:57ZengElsevierHealth Care Transitions2949-92322024-01-012100063Development of a multi-level/multi-modal intervention for health care transition preparationBeth H. Garland0Mary Majumder1Constance M. Wiemann2Blanca Sanchez-Fournier3Jordyn Babla4Albert C. Hergenroeder5Baylor College of Medicine and Texas Children’s Hospital, Division of Adolescent Medicine and Sports Medicine, 6701 Fannin Street, Suite 1710, Houston, TX 77030, USA; Corresponding author.Baylor College of Medicine, Center for Medical Ethics and Health Policy, 1 Baylor Plz, Houston, TX 77030, USABaylor College of Medicine and Texas Children’s Hospital, Division of Adolescent Medicine and Sports Medicine, 6701 Fannin Street, Suite 1710, Houston, TX 77030, USABaylor College of Medicine and Texas Children’s Hospital, Division of Adolescent Medicine and Sports Medicine, 6701 Fannin Street, Suite 1710, Houston, TX 77030, USABaylor College of Medicine and Texas Children’s Hospital, Division of Adolescent Medicine and Sports Medicine, 6701 Fannin Street, Suite 1710, Houston, TX 77030, USABaylor College of Medicine and Texas Children’s Hospital, Division of Adolescent Medicine and Sports Medicine, 6701 Fannin Street, Suite 1710, Houston, TX 77030, USAAims: Health care transition (HCT) to adult care and young adult disease self-management is a multi-step process involving three major stakeholders – the adolescent, the caregiver, and the provider. Preparation gaps exist within each of these stakeholder groups. This paper presents the development of the Intervention to Promote Autonomy and Competence in Transition-aged Youth (IPACT), a multi-level (adolescent, caregiver, provider), multi-modal (interactive skill building sessions, educational materials, videos) intervention to address gaps in all three stakeholder groups simultaneously and help support achieving the three core elements of HCT planning. Methods: Eight processes were utilized to develop the IPACT intervention, including reliance on existing literature and materials, stakeholder feedback at multiple points during development, and regular support and guidance from service liaisons within each of four tertiary-care clinics targeted for this intervention within a large, urban children’s hospital. Conclusions: IPACT includes the conceptual schema, logic model, intervention curriculum components, and implementation timeline. IPACT could be used by programs to simultaneously address gaps in stakeholder HCT planning knowledge and skills.http://www.sciencedirect.com/science/article/pii/S2949923224000230Intervention developmentAdolescent and Young Adults with Special Health Care NeedsCaregiversPediatric providersHealthcare Self-management |
| spellingShingle | Beth H. Garland Mary Majumder Constance M. Wiemann Blanca Sanchez-Fournier Jordyn Babla Albert C. Hergenroeder Development of a multi-level/multi-modal intervention for health care transition preparation Health Care Transitions Intervention development Adolescent and Young Adults with Special Health Care Needs Caregivers Pediatric providers Healthcare Self-management |
| title | Development of a multi-level/multi-modal intervention for health care transition preparation |
| title_full | Development of a multi-level/multi-modal intervention for health care transition preparation |
| title_fullStr | Development of a multi-level/multi-modal intervention for health care transition preparation |
| title_full_unstemmed | Development of a multi-level/multi-modal intervention for health care transition preparation |
| title_short | Development of a multi-level/multi-modal intervention for health care transition preparation |
| title_sort | development of a multi level multi modal intervention for health care transition preparation |
| topic | Intervention development Adolescent and Young Adults with Special Health Care Needs Caregivers Pediatric providers Healthcare Self-management |
| url | http://www.sciencedirect.com/science/article/pii/S2949923224000230 |
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