The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation
The purpose of this study was to describe the perspectives of young adults with cerebral palsy on participating in the transition process when transitioning from children’s health care to adults’ health care and rehabilitation. A phenomenographic approach with data collected with semi-structured int...
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| Format: | Article |
| Language: | English |
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MDPI AG
2025-01-01
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| Online Access: | https://www.mdpi.com/2673-7272/5/1/12 |
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| author | Ira Jeglinsky-Kankainen Nea Vänskä Anu Kinnunen Heli Sätilä Salla Sipari |
| author_facet | Ira Jeglinsky-Kankainen Nea Vänskä Anu Kinnunen Heli Sätilä Salla Sipari |
| author_sort | Ira Jeglinsky-Kankainen |
| collection | DOAJ |
| description | The purpose of this study was to describe the perspectives of young adults with cerebral palsy on participating in the transition process when transitioning from children’s health care to adults’ health care and rehabilitation. A phenomenographic approach with data collected with semi-structured interviews was used. Fourteen young adults aged 19–26 with cerebral palsy participated. The analysis resulted in four categories: (1) need for comprehensive and participatory rehabilitation; (2) barriers in the rehabilitation system; (3) self-awareness, courage and activity are rewarded; and (4) a dream of an active role in society. To conclude, the young adults had both positive and negative experiences of the transition process as well as of the rehabilitation planning at the adult health care service. It is important to start the transition planning early, and to involve the young adult as an active participant in the planning process. Both in the transition phase and in the adult health care service an anticipatory and collaborative approach where the young adult’s holistic needs would be considered should be standard practice. A focus is needed on how to grow towards a good adulthood and how to live a meaningful life as a valued member of society. |
| format | Article |
| id | doaj-art-83f0ebf33c8243c4be4e671cadb9beb6 |
| institution | Kabale University |
| issn | 2673-7272 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Disabilities |
| spelling | doaj-art-83f0ebf33c8243c4be4e671cadb9beb62025-08-20T03:43:02ZengMDPI AGDisabilities2673-72722025-01-01511210.3390/disabilities5010012The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and RehabilitationIra Jeglinsky-Kankainen0Nea Vänskä1Anu Kinnunen2Heli Sätilä3Salla Sipari4Graduate School and Research, Arcada University of Applied Sciences, 00560 Helsinki, FinlandFutureproof Health and Wellbeing Innovation Hub, Metropolia University of Applied Sciences, 00920 Helsinki, FinlandMaster School, Savonia University of Applied Sciences, 70210 Kuopio, FinlandDepartment of Child Neurology, Päijät-Häme Central Hospital, 15850 Lahti, FinlandFutureproof Health and Wellbeing Innovation Hub, Metropolia University of Applied Sciences, 00920 Helsinki, FinlandThe purpose of this study was to describe the perspectives of young adults with cerebral palsy on participating in the transition process when transitioning from children’s health care to adults’ health care and rehabilitation. A phenomenographic approach with data collected with semi-structured interviews was used. Fourteen young adults aged 19–26 with cerebral palsy participated. The analysis resulted in four categories: (1) need for comprehensive and participatory rehabilitation; (2) barriers in the rehabilitation system; (3) self-awareness, courage and activity are rewarded; and (4) a dream of an active role in society. To conclude, the young adults had both positive and negative experiences of the transition process as well as of the rehabilitation planning at the adult health care service. It is important to start the transition planning early, and to involve the young adult as an active participant in the planning process. Both in the transition phase and in the adult health care service an anticipatory and collaborative approach where the young adult’s holistic needs would be considered should be standard practice. A focus is needed on how to grow towards a good adulthood and how to live a meaningful life as a valued member of society.https://www.mdpi.com/2673-7272/5/1/12transitionparticipationyoung adultscerebral palsy |
| spellingShingle | Ira Jeglinsky-Kankainen Nea Vänskä Anu Kinnunen Heli Sätilä Salla Sipari The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation Disabilities transition participation young adults cerebral palsy |
| title | The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation |
| title_full | The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation |
| title_fullStr | The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation |
| title_full_unstemmed | The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation |
| title_short | The Perspectives of Young Adults with Cerebral Palsy on Transition to Adult’s Health Care and Rehabilitation |
| title_sort | perspectives of young adults with cerebral palsy on transition to adult s health care and rehabilitation |
| topic | transition participation young adults cerebral palsy |
| url | https://www.mdpi.com/2673-7272/5/1/12 |
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