Pandemic preparedness needs for children with rare diseases and their families: A perspective of COVID-19 experiences

Pandemic preparedness needs for children with rare diseases and their families: A perspective of COVID-19 experiences

People living with rare diseases had a high risk of negative health outcomes due to COVID-19. Pandemic preparedness will ensure best practice procedures and optimal outcomes during future pandemic events. This paper sought to understand the needs of children with rare diseases during the COVID-19 pa...

Full description

Saved in:
Bibliographic Details
Main Authors: Jessica Keeley, Aysha Stroobach, Meg Huston, Andrew Wilson, Jenny Lam, Adelaide Withers, Cornelia van Veldhuisen, Gareth Baynam, Jenny Downs
Format: Article
Language:English
Published: Elsevier 2024-01-01
Series:Rare
Subjects:
Rare disease
Pandemic preparedness
COVID-19
Neuromuscular disorders
Bronfenbrenner’s socio-ecological systems model
Online Access:http://www.sciencedirect.com/science/article/pii/S295000872400022X
Tags: Add Tag
No Tags, Be the first to tag this record!

Internet

http://www.sciencedirect.com/science/article/pii/S295000872400022X

Similar Items