Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens

Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens

Abstract Introduction Sharing patient health information and biospecimens can improve health outcomes and accelerate breakthroughs in medical research. But patients generally lack understanding of how their clinical data and biospecimens are used or commercialized for research. In this mixed methods...

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Main Authors: Kayte Spector‐Bagdady, Kerry A. Ryan, Luyun Chen, Camille Giacobone, Reshma Jagsi, Reema Hamasha, Katherine Hendy, J. Denard Thomas, Jessie M. Milne, Alexandra H. Vinson, Jodyn Platt
Format: Article
Language:English
Published: Wiley 2025-01-01
Series:Learning Health Systems
Subjects:
autonomy
data sharing
informed consent
research
Online Access:https://doi.org/10.1002/lrh2.10450
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https://doi.org/10.1002/lrh2.10450

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