Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study

Family planning, sexual activity and contraception in hereditary hemorrhagic telangiectasia: a European survey study

Abstract Background Hereditary hemorrhagic telangiectasia (HHT) can influence the quality of life and social relationships, mostly due to epistaxis, but the topics of family planning, sexual activity and contraception have not been investigated to date. This study aimed to gain more insight: what is...

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Main Authors: Josefien Hessels, Marco C. Post, Sanne Boerman, Freya Droege, Olivier Dupuis, ePAG, Urban W. Geisthoff, Pernille D. Haahr, Anette D. Kjeldsen, Johannes-Jurgen Mager, Sophie Dupuis-Girod, Elisabetta Buscarini
Format: Article
Language:English
Published: BMC 2025-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Hereditary hemorrhagic telangiectasia
Family planning
Sexual activity
Intimacy
Contraception
Questionnaire
Online Access:https://doi.org/10.1186/s13023-025-03887-x
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https://doi.org/10.1186/s13023-025-03887-x

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