Review of a specialist Rett syndrome clinic from 2003 to the COVID pandemic: clinic experience and carer perspectives

Abstract Background We have held a ‘trouble-shooting’ clinic for Rett syndrome patients from 2003 until the COVID pandemic in 2020. The clinic was multidisciplinary, including clinical genetics, paediatric neurology, adult learning disability psychiatry and physiotherapy. Access to specialist commun...

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Bibliographic Details
Main Authors: Emily Sloper, Megan Hunt, Angus John Clarke
Format: Article
Language:English
Published: BMC 2024-12-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Online Access:https://doi.org/10.1186/s13023-024-03483-5
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