Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?

This article starts from the observation of a higher involvement of associations in the field of pediatric oncology, which differs from adult oncology. Building on two surveys, concerning respectively adult and pediatric cancers, we connect this difference to the specificity of parents’ associations...

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Main Authors: Céline Gabarro, Sandrine Knobé, Emilien Schultz
Format: Article
Language:fra
Published: Association Anthropologie Médicale Appliquée au Développement et à la Santé 2021-07-01
Series:Anthropologie & Santé
Subjects:
Online Access:https://journals.openedition.org/anthropologiesante/9749
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author Céline Gabarro
Sandrine Knobé
Emilien Schultz
author_facet Céline Gabarro
Sandrine Knobé
Emilien Schultz
author_sort Céline Gabarro
collection DOAJ
description This article starts from the observation of a higher involvement of associations in the field of pediatric oncology, which differs from adult oncology. Building on two surveys, concerning respectively adult and pediatric cancers, we connect this difference to the specificity of parents’ associations. More precisely, we identify two particular forms of associations led by parents, less common among adult patients: on the one hand, associations attached to a hospital department, and on the other hand, associations “personalized” around the history of a family. It appears that if the experience of the disease constitutes a common motor for commitment among adult patients and parents of sick children, it is its influence on parental identity that accounts for the existence of these two forms of associations. By documenting associative commitment in the field of pediatric cancers, this article invites us to take a closer look at the consequences of the recomposition of parental identities in the associative dynamics related to the disease.
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institution Kabale University
issn 2111-5028
language fra
publishDate 2021-07-01
publisher Association Anthropologie Médicale Appliquée au Développement et à la Santé
record_format Article
series Anthropologie & Santé
spelling doaj-art-3eb3c4b2e7fd4260b4833ec959f8b51d2025-08-20T03:47:37ZfraAssociation Anthropologie Médicale Appliquée au Développement et à la SantéAnthropologie & Santé2111-50282021-07-012310.4000/anthropologiesante.9749Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?Céline GabarroSandrine KnobéEmilien SchultzThis article starts from the observation of a higher involvement of associations in the field of pediatric oncology, which differs from adult oncology. Building on two surveys, concerning respectively adult and pediatric cancers, we connect this difference to the specificity of parents’ associations. More precisely, we identify two particular forms of associations led by parents, less common among adult patients: on the one hand, associations attached to a hospital department, and on the other hand, associations “personalized” around the history of a family. It appears that if the experience of the disease constitutes a common motor for commitment among adult patients and parents of sick children, it is its influence on parental identity that accounts for the existence of these two forms of associations. By documenting associative commitment in the field of pediatric cancers, this article invites us to take a closer look at the consequences of the recomposition of parental identities in the associative dynamics related to the disease.https://journals.openedition.org/anthropologiesante/9749Franceassociationspediatric cancersmobilizationparental identitybereaved parents
spellingShingle Céline Gabarro
Sandrine Knobé
Emilien Schultz
Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
Anthropologie & Santé
France
associations
pediatric cancers
mobilization
parental identity
bereaved parents
title Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
title_full Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
title_fullStr Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
title_full_unstemmed Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
title_short Le paysage associatif du cancer : quelles spécificités pour les associations de parents ?
title_sort le paysage associatif du cancer quelles specificites pour les associations de parents
topic France
associations
pediatric cancers
mobilization
parental identity
bereaved parents
url https://journals.openedition.org/anthropologiesante/9749
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AT sandrineknobe lepaysageassociatifducancerquellesspecificitespourlesassociationsdeparents
AT emilienschultz lepaysageassociatifducancerquellesspecificitespourlesassociationsdeparents