Protocol for the development and multisite validation of the Quality of Dying and Death-Revised Global Version scale by Camilla Zimmermann, Ekaterina An, Sarah Hales, Gary Rodin, Eve Namisango, Kenneth Mah, Lameck Thambo, Christian Ntizimira, Alyssa Tilly, Warren Lewin, Mano Chandrakumar, Arnell Baguio, Nazira Jaffer, Maria Chikasema, Kayla Wolofsky, Mary Goombs

“…Cognitive interviews with subsets of North American and Malawian caregivers will assess the perceived relevance of the scale items. …”
Get full text

Top 10 palliative care research priorities in France: a 3-step, mixed-methods protocol (AXEPRO study) by Stéphane Sanchez, Guillaume Economos, Fiona Ecarnot, Cecile Barbaret, Raphaëlle Habert-Dantigny, Héloïse Rouze, Doan Huynh, Roseline Huynh, Caroline Tête, Martin Julier-Costes, Valérie Amouroux-Gorsse, Isabelle Lavault, Justine Bret

“…There are also potential benefits for patients and caregivers, by including them as partners in future research. …”
Get full text

Exploring Caring Motivation Barriers among Mothers of Children with Intellectual and Developmental Disabilities: A Qualitative Content Analysis by Seyed Javad Hosseini, Monir Ramezani, Farah Ashrafzadeh, Jamshid Jamali

“…Future research should take these barriers into account to enhance maternal caregiving motivation. To modify the identified obstacles, a comprehensive plan of actions should be devised.…”
Get full text

Work-related grief and bereavement experiences of social and community service workers working with people experiencing social disadvantage: a rapid scoping review by Kara Whitlock, Zahra Premji, Ashley Mollison, Carolina Posada, Mauricio Arias-Rojas, Charlotte Futcher, Kelli I. Stajduhar

“…Abstract Background While an extensive body of research in palliative care exists on the experiences of grief and bereavement among family caregivers, much of this research is based on normative assumptions of who family caregivers are – housed, financially stable, and with extended family and/or friends to draw on for support. …”
Get full text

A scoping review of the post-discharge care needs of babies requiring surgery in the first year of life. by Francesca Giulia Maraschin, Fidelis Jacklyn Adella, Shobhana Nagraj

“…Post-discharge, these infants have various care needs provided by caregivers, yet literature on these needs is scant. …”
Get full text

Development and validation of the respite care model for adults with cancer in Iran: study protocol for a multimethod research project by Vahid Pakpour, Fatemeh Sadeghi-Ghyassi, Azad Rahmani, Nasrin Kheibar, Maryam Rassouli

“…Introduction The primary caregivers of patients with cancer, especially in advanced stages, experience significant physical and emotional strain and require comprehensive support. …”
Get full text

Families’ Experiences With Family-Focused Web-Based Interventions for Improving Health: Qualitative Systematic Literature Review by Diana Zhu, Aimee L Dordevic, Zoe E Davidson, Simone Gibson

“…The studies examined the experiences of school-aged children (aged 5-18 years) and their caregivers (mostly mothers) with 26 web-based interventions that were developed to manage 17 different health conditions or influence health-supporting behaviors. …”
Get full text

Les représentations et rôles des soignants au regard des pratiques d’ETP by Claire Llambrich, Cécile Pouteau

“…Finally, an essential dimension of the transformations lies in the caregivers’acceptation of changing their role in education by their own.…”
Get full text

Post-Fall Intelligence Supporting Fall Severity Diagnosis Using Kinect Sensor by Bunthit Watanapa, Orasa Patsadu, Piyapat Dajpratham, Chakarida Nukoolkit

“…The system shall be beneficial to caregivers or doctors, in giving first aid/diagnosis/treatment to the subject, especially, in cases where the subject has lost consciousness and is unable to respond.…”
Get full text

WhatsApp and atopic dermatitis: a clinical trial by Thaís Braga Cerqueira, Renata Robl Imoto, Mariana Muzzolon, Vânia Oliveira de Carvalho

“…The QoL of children and caregivers improved only in the EG (p = 0.01). Intergroup analysis showed no differences. …”
Get full text

Health-related quality of life in children with presumptive TB by M.G. Anthony, L.S. Johnson, M. van Niekerk, A. Mfwaze, B. Bavuma, A.C. Hesseling, G. Hoddinott, M.M. van der Zalm

“…Qualitative data from 15 caregivers of 21 children included 10 (67%) children with TB and 5 (33%) symptomatic controls. …”
Get full text

Qualitative Insights on Barriers to Receiving a Second Dose of Measles-Containing Vaccine (MCV2), Oromia Region of Ethiopia by Kalkidan Solomon, Brooke N. Aksnes, Abyot Bekele Woyessa, Chala Gari Sadi, Almea M. Matanock, Monica P. Shah, Paulos Samuel, Bekana Tolera, Birhanu Kenate, Abebe Bekele, Tesfaye Deti, Getachew Wako, Amsalu Shiferaw, Yohannes Lakew Tefera, Melkamu Ayalew Kokebie, Tatek Bogale Anbessie, Habtamu Teklie Wubie, Aaron Wallace, Ciara E. Sugerman, Mirgissa Kaba

“…In this qualitative study, we explored barriers to the uptake of MCV2 among caregivers, community leaders, and healthcare workers (HCWs). …”
Get full text

Grandmothers as Parents by Suzanna Smith

“…FAR0076, a 2-page transcript of the Family Album Radio Program broadcast by Suzanna Smith, describes seven parenting strategies reported in a study of caregiving grandmothers. Published by the UF Department of Family Youth and Community Sciences, March 2009. …”
Get full text

Grandmothers as Parents by Suzanna Smith

“…FAR0076, a 2-page transcript of the Family Album Radio Program broadcast by Suzanna Smith, describes seven parenting strategies reported in a study of caregiving grandmothers. Published by the UF Department of Family Youth and Community Sciences, March 2009. …”
Get full text

How prepared are families for patients undergoing continuous ambulatory peritoneal dialysis therapy? by Siti Fatimah, Azizah Khoiriyati

“…Family readiness is crucial in Continuous Ambulatory Peritoneal Dialysis (CAPD) therapy, as families play a central role as caregivers, helping to maintain care quality and reduce complications. …”
Get full text

Physical Effects of Maternal Deaths on Midwives’ Health: A Qualitative Approach by Anita Fafa Dartey, Ellemes Phuma-Ngaiyaye

“…A purposive sample of 18 ward supervisors and 39 ward midwives was used to ascertain the physical effects of maternal deaths on these caregivers in the Ashanti Region of Ghana. Data were collected through semistructured and focus group discussions. …”
Get full text

Feasibility of home-based urine collection in children under 5 years in the ORIGINS birth cohort study: mixed method protocol and sample completion results by Courtney D. A. Kidd, Najma A. Moumin, Andrea MacRae, Tim J. Green, Desiree T. Silva, Susan L. Prescott, Nina D’Vaz

“…Results Over half of all eligible caregivers (1929/3713, 52%) returned a sample, 91% meeting quality standards. …”
Get full text

Mindfulness-based retreat for mothers of paediatric heart transplant recipients: protocol for a pilot intervention study by Sara Ahola Kohut, Joanna Mitchell, Samantha J Anthony, Taylor Robertson, Heather Telfer, Mirna Seifert-Hansen

“…Introduction Mothers are often the primary caregivers for children requiring heart transplantation. …”
Get full text

The power of personas: Exploring an innovative model for understanding stakeholder perspectives in an oncology learning health network by Dylan J. Cooper, Jessie Karten, Sarah E. Hoffe, Daniel A. King, Matthew Weiss, Danielle K. DePeralta, Andrew L. Coveler, Sunil R. Hingorani, Tracey Shefter, Cheryl Meguid, Hannah Roberts, Theodore S. Hong, Amol Narang, Amy Hacker‐Prietz, George A. Fisher, Jay Sandler, Laurie Singer, Bobby Korah, William Hoos, Carrie T. Stricker, Joseph M. Herman

“…Together with the firm, we developed a personas model approach to represent the wide range of diverse perspectives among the representative stakeholders, which included care team members, patients, and caregivers. Results Thirty‐one stakeholders from all facets of pancreatic cancer care were interviewed, including 20 care team members, 8 patients, and 3 caregivers. …”
Get full text

Long-Term Impact of Bronchopulmonary Dysplasia on Pulmonary Function by Jennifer S Landry, Tiffany Chan, Larry Lands, Dick Menzies

“…BACKGROUND: Bronchopulmonary dysplasia (BPD) and the long-term respiratory consequences of prematurity are unfamiliar to adult respirologists and remain under-recognized entities to adult caregivers. In Canada, the incidence of preterm births and its main chronic respiratory complication, BPD, have increased over the past 25 years.…”
Get full text