Healthcare perceptions on surgical management for children diagnosed with neuroblastoma in South Africa

Background: Surgical management in neuroblastoma predicts survival and determines morbidity globally but is not standardized in South Africa. We evaluated South African healthcare workers’ perceptions of surgical management of neuroblastoma. Methods: A national survey on neuroblastoma surgical pract...

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Bibliographic Details
Main Authors: Jaques van Heerden, Mariana Kruger, Tonya Marianne Esterhuizen, Gita Naidu, Derek Stanley Harrison
Format: Article
Language:English
Published: Elsevier 2025-09-01
Series:Pediatric Hematology Oncology Journal
Online Access:http://www.sciencedirect.com/science/article/pii/S2468124525000555
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Summary:Background: Surgical management in neuroblastoma predicts survival and determines morbidity globally but is not standardized in South Africa. We evaluated South African healthcare workers’ perceptions of surgical management of neuroblastoma. Methods: A national survey on neuroblastoma surgical practices were developed by Delphi method and distributed to medical and surgical healthcare workers managing children diagnosed with neuroblastoma. Results: Thirty-five surveys were completed: 17 (49 %) were medical and 18 (51 %) were surgical disciplines. The median experience was 7.5 years (range 1–22 years). Twenty (57 %) respondents managed less than 5 cases/year. Twenty-seven (77 %) dealt with mainly metastasized tumours. The majority of tumours had more than one image-defined risk factor at presentation. Sixteen (46 %) stated that their decision to perform surgery was influenced by gaining metastatic complete remission , next followed by vascular encasement (25 %).Barriers to surgery were a lack of neuroblastoma-specific surgical skills (77 %), tumour operability (50 %) and operating time (21 %). Roughly half i.e. 49 % (n = 17) of respondents were in favour of centralizing neuroblastoma surgical management. Twenty-six (74 %) reported surgical management as part of a multi-disciplinary team until patients were discharged from intensive care. The number of years of a respondent's experience influenced the degree of resection achieved in HR tumours (p = 0.021). Conclusions: Non-standardized surgical practice in neuroblastoma management exists in South Africa. Optimizing surgical resources, management and skills may improve surgical outcomes.
ISSN:2468-1245