Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation

<strong>Objective</strong>: We aimed to answer the following research question: From the perspectives of patients, family members, and health professionals, how are families involved in the rehabilitation of adult patients with Traumatic Brain Injury at an inpatient Acquired Brain Injury...

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Main Authors: Kaylee Eady, Katherine Moreau, Shawn Marshall, Mary Egan
Format: Article
Language:English
Published: The Beryl Institute 2024-11-01
Series:Patient Experience Journal
Subjects:
Online Access:https://pxjournal.org/journal/vol11/iss3/6
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author Kaylee Eady
Katherine Moreau
Shawn Marshall
Mary Egan
author_facet Kaylee Eady
Katherine Moreau
Shawn Marshall
Mary Egan
author_sort Kaylee Eady
collection DOAJ
description <strong>Objective</strong>: We aimed to answer the following research question: From the perspectives of patients, family members, and health professionals, how are families involved in the rehabilitation of adult patients with Traumatic Brain Injury at an inpatient Acquired Brain Injury service within an adult rehabilitation centre? <strong>Methods</strong>: We used an interpretive qualitative approach, from a constructivist view. This approach allowed us to understand and describe family involvement from the perspectives of patients with Traumatic Brain Injury, family members, and health professionals. We conducted one-on-one interviews with patients, family members, and health professionals. We used a three-step analysis method: data reduction, data display, and conclusions/verifications. <strong>Results</strong>: Six patients, four family members, and ten health professionals participated. Participants described how families are involved in supporting and encouraging the patient, seeking and exchanging information, making decisions, and care and therapy. <strong>Conclusion</strong>: Overall, patients and family members perceived family involvement as critical, while health professionals viewed it as not always necessary. This study also revealed that patients and family members shared similar understandings of family involvement but had different understandings than health professionals. Recognizing that the adult population and rehabilitation processes are unique and complex, we need to understand how to support family involvement, through patient- and family-centered care, in this type of setting. We also need to understand how to better facilitate patient-family-health professional collaboration.
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spelling doaj-art-ee91c158d4184f12b0cd836caca8d8a42025-01-08T20:21:43ZengThe Beryl InstitutePatient Experience Journal2372-02472024-11-0111310.35680/2372-0247.1891Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury RehabilitationKaylee EadyKatherine MoreauShawn MarshallMary Egan<strong>Objective</strong>: We aimed to answer the following research question: From the perspectives of patients, family members, and health professionals, how are families involved in the rehabilitation of adult patients with Traumatic Brain Injury at an inpatient Acquired Brain Injury service within an adult rehabilitation centre? <strong>Methods</strong>: We used an interpretive qualitative approach, from a constructivist view. This approach allowed us to understand and describe family involvement from the perspectives of patients with Traumatic Brain Injury, family members, and health professionals. We conducted one-on-one interviews with patients, family members, and health professionals. We used a three-step analysis method: data reduction, data display, and conclusions/verifications. <strong>Results</strong>: Six patients, four family members, and ten health professionals participated. Participants described how families are involved in supporting and encouraging the patient, seeking and exchanging information, making decisions, and care and therapy. <strong>Conclusion</strong>: Overall, patients and family members perceived family involvement as critical, while health professionals viewed it as not always necessary. This study also revealed that patients and family members shared similar understandings of family involvement but had different understandings than health professionals. Recognizing that the adult population and rehabilitation processes are unique and complex, we need to understand how to support family involvement, through patient- and family-centered care, in this type of setting. We also need to understand how to better facilitate patient-family-health professional collaboration.https://pxjournal.org/journal/vol11/iss3/6adultfamily involvementinpatientspatient- and family-centred carequalitativerehabilitationtraumatic brain injuries
spellingShingle Kaylee Eady
Katherine Moreau
Shawn Marshall
Mary Egan
Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation
Patient Experience Journal
adult
family involvement
inpatients
patient- and family-centred care
qualitative
rehabilitation
traumatic brain injuries
title Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation
title_full Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation
title_fullStr Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation
title_full_unstemmed Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation
title_short Patient, Family, and Health Professional Perspectives of How Families are Involved in Adult Inpatient Traumatic Brain Injury Rehabilitation
title_sort patient family and health professional perspectives of how families are involved in adult inpatient traumatic brain injury rehabilitation
topic adult
family involvement
inpatients
patient- and family-centred care
qualitative
rehabilitation
traumatic brain injuries
url https://pxjournal.org/journal/vol11/iss3/6
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AT katherinemoreau patientfamilyandhealthprofessionalperspectivesofhowfamiliesareinvolvedinadultinpatienttraumaticbraininjuryrehabilitation
AT shawnmarshall patientfamilyandhealthprofessionalperspectivesofhowfamiliesareinvolvedinadultinpatienttraumaticbraininjuryrehabilitation
AT maryegan patientfamilyandhealthprofessionalperspectivesofhowfamiliesareinvolvedinadultinpatienttraumaticbraininjuryrehabilitation