Experiences of Patients and Families Living with Krabbe Disease

Experiences of Patients and Families Living with Krabbe Disease

The challenges faced by patients with Krabbe disease remain unelucidated. This study aimed to identify these challenges and facilitate the development of methods for assessing the quality of life. This qualitative descriptive study used in-person or online semistructured interviews from March to Dec...

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Bibliographic Details
Main Authors: Yuta Koto PhD, Wakana Yamashita MSN, Kumiko Kitamura MSN, Norio Sakai PhD
Format: Article
Language:English
Published: SAGE Publishing 2025-01-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/23743735241309470
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