‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

Background and objectives Presymptomatic testing is available for early diagnosis of hereditary autosomal dominant polycystic kidney disease (ADPKD). However, the complex ethical and psychosocial implications can make decision-making challenging and require an understanding of patients’ values, goal...

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Main Authors: Angela Ju, Allison Tong, Armando Teixeira-Pinto, David Johnson, Jonathan Craig, Martin Howell, Ron T Gansevoort, Talia Gutman, Karine E Manera, Peter Kerr, Gopala K Rangan, Curie Ahn, Tess Harris, Charlotte Logeman, Yeoungjee Cho, Benedicte Sautenet, Albert Ong, Arlene Chapman, Helen Coolican, Juliana Tze-Wah Kao, Ronald Perrone, Vincent Torres, Kevin Fowler, York Pei, Jessica Ryan, Andrea Viecelli, Clair Geneste, Hyunsuk Kim, Yaerim Kim, Gayathri Parasivam
Format: Article
Language:English
Published: BMJ Publishing Group 2020-10-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/10/10/e038005.full
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