Health care supply in patients with Ehlers-Danlos syndromes and generalized hypermobility spectrum disorder: a German perspective

Health care supply in patients with Ehlers-Danlos syndromes and generalized hypermobility spectrum disorder: a German perspective

Abstract Background Diagnosing Ehlers-Danlos syndromes (EDS) and EDS-related “hypermobility spectrum disorder” (HSD) is challenging and cutaneous manifestations often serve as indicators of these rare connective tissue disorders. Only limited data exist on the healthcare of EDS/HSD in Germany as spe...

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Bibliographic Details
Main Authors: Jonas Rauterberg, Marie Hock, Nikolaus Kernich, Arim Shukri, Henning Klapproth, Vanessa Löw, Michaela Henning, Iliana Tantcheva-Poór
Format: Article
Language:English
Published: BMC 2025-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Hereditary connective skin disorders
Genodermatoses
Ehlers-danlos syndromes
Hypermobility spectrum disorder
Generalized hypermobility
Health care supply
Online Access:https://doi.org/10.1186/s13023-025-03937-4
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https://doi.org/10.1186/s13023-025-03937-4

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