The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study
Purpose To explore brachial plexus birth injury (BPBI)-affected adults’ health-related quality of life (HRQoL) experiences informed by the theoretical framework of the International Classification of Functioning, Disability, and Health. Methods This study applied a qualitative collective case study...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
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| Online Access: | http://dx.doi.org/10.1080/17482631.2024.2408810 |
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| _version_ | 1846124692280180736 |
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| author | Jenny M. Dorich Jordyn Whiting Vicki L. Plano Clark Richard F. Ittenbach Roger Cornwall |
| author_facet | Jenny M. Dorich Jordyn Whiting Vicki L. Plano Clark Richard F. Ittenbach Roger Cornwall |
| author_sort | Jenny M. Dorich |
| collection | DOAJ |
| description | Purpose To explore brachial plexus birth injury (BPBI)-affected adults’ health-related quality of life (HRQoL) experiences informed by the theoretical framework of the International Classification of Functioning, Disability, and Health. Methods This study applied a qualitative collective case study design. Twelve participants who participated in a prior survey study were recruited using maximum variation sampling. One-on-one semi-structured interviews focused on gaining in-depth understanding of participants’ experiences with HRQoL. Interviews were recorded verbatim and thematically analysed. Results We identified two themes. First, the theme biopsychosocial dimensions of the experience comprised the ways BPBI affects physical and emotional health and how BPBI is intertwined with affected individuals’ identities, activities/participation, and social environments. Second, the theme lifelong and variable experience encompassed how BPBI is a chronic condition that changes over time and varies among affected individuals. The cross-case analysis derived a conceptual model of BPBI HRQoL to describe the BPBI experience through the lifespan. In this model, multiple dimensions of BPBI HRQoL expand through the lifespan while BPBI-specific health resources’ availability contract. Conclusions By providing insight into the many ways that BPBI affects and is affected by an individual’s functioning and personal, social, and healthcare environmental factors, these findings underscore lifelong individualized care for BPBI-affected persons is needed. |
| format | Article |
| id | doaj-art-e2e5358f79634195a63c020df1a1b7f6 |
| institution | Kabale University |
| issn | 1748-2623 1748-2631 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj-art-e2e5358f79634195a63c020df1a1b7f62024-12-13T15:19:03ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312024-12-0119110.1080/17482631.2024.24088102408810The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case studyJenny M. Dorich0Jordyn Whiting1Vicki L. Plano Clark2Richard F. Ittenbach3Roger Cornwall4University of CincinnatiUnited Brachial Plexus NetworkUniversity of CincinnatiUniversity of CincinnatiUniversity of CincinnatiPurpose To explore brachial plexus birth injury (BPBI)-affected adults’ health-related quality of life (HRQoL) experiences informed by the theoretical framework of the International Classification of Functioning, Disability, and Health. Methods This study applied a qualitative collective case study design. Twelve participants who participated in a prior survey study were recruited using maximum variation sampling. One-on-one semi-structured interviews focused on gaining in-depth understanding of participants’ experiences with HRQoL. Interviews were recorded verbatim and thematically analysed. Results We identified two themes. First, the theme biopsychosocial dimensions of the experience comprised the ways BPBI affects physical and emotional health and how BPBI is intertwined with affected individuals’ identities, activities/participation, and social environments. Second, the theme lifelong and variable experience encompassed how BPBI is a chronic condition that changes over time and varies among affected individuals. The cross-case analysis derived a conceptual model of BPBI HRQoL to describe the BPBI experience through the lifespan. In this model, multiple dimensions of BPBI HRQoL expand through the lifespan while BPBI-specific health resources’ availability contract. Conclusions By providing insight into the many ways that BPBI affects and is affected by an individual’s functioning and personal, social, and healthcare environmental factors, these findings underscore lifelong individualized care for BPBI-affected persons is needed.http://dx.doi.org/10.1080/17482631.2024.2408810brachial plexus birth injuryadultshealth-related quality of lifeinternational classification of functioningdisability and health (icf) |
| spellingShingle | Jenny M. Dorich Jordyn Whiting Vicki L. Plano Clark Richard F. Ittenbach Roger Cornwall The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study International Journal of Qualitative Studies on Health & Well-Being brachial plexus birth injury adults health-related quality of life international classification of functioning disability and health (icf) |
| title | The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study |
| title_full | The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study |
| title_fullStr | The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study |
| title_full_unstemmed | The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study |
| title_short | The dynamic and diverse experience of adults with brachial plexus birth injury: a collective case study |
| title_sort | dynamic and diverse experience of adults with brachial plexus birth injury a collective case study |
| topic | brachial plexus birth injury adults health-related quality of life international classification of functioning disability and health (icf) |
| url | http://dx.doi.org/10.1080/17482631.2024.2408810 |
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