Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice

Background Cystic Fibrosis (CF) is a genetic life limiting disease that impacts upon quality of life. An aim of CF care is to preserve lung function, with physical activity (PA) being an important part of daily airway clearance. Ensuring children have opportunities to engage in PA at school should b...

Full description

Saved in:
Bibliographic Details
Main Authors: Emma Powell, Lorayne A Woodfield, Alexander J Powell, Tony D Myers, Miranda Barker
Format: Article
Language:English
Published: Taylor & Francis Group 2024-12-01
Series:International Journal of Qualitative Studies on Health & Well-Being
Subjects:
Online Access:http://dx.doi.org/10.1080/17482631.2024.2419165
Tags: Add Tag
No Tags, Be the first to tag this record!
_version_ 1846124689234067456
author Emma Powell
Lorayne A Woodfield
Alexander J Powell
Tony D Myers
Miranda Barker
author_facet Emma Powell
Lorayne A Woodfield
Alexander J Powell
Tony D Myers
Miranda Barker
author_sort Emma Powell
collection DOAJ
description Background Cystic Fibrosis (CF) is a genetic life limiting disease that impacts upon quality of life. An aim of CF care is to preserve lung function, with physical activity (PA) being an important part of daily airway clearance. Ensuring children have opportunities to engage in PA at school should be an important part of their daily routine. It is important to gain parental perspectives on this, as they manage the daily care for their children. This study aims to explore parents’ perceptions of school-based PA for their children with CF. Methods Parents of children with CF (n = 10), from three regions of the UK (England, Wales and Northern Ireland) took part in online semi-structured interviews. Data were analysed using Interpretative Phenomenological Analysis (IPA). Results Although parents recognized the benefits of school-based PA for their children, systemic barriers in the school setting often inhibit daily PA for children with CF, including teachers’ misconceptions, emotional and physical barriers, and PA not being a priority. Conclusion Recommendations for practice have been developed to help engage children with CF in daily school-based PA in an inclusive way, with the hope of maintaining health outcomes for children with CF.
format Article
id doaj-art-dae2cff8d4f34b44b1007650316fc73f
institution Kabale University
issn 1748-2623
1748-2631
language English
publishDate 2024-12-01
publisher Taylor & Francis Group
record_format Article
series International Journal of Qualitative Studies on Health & Well-Being
spelling doaj-art-dae2cff8d4f34b44b1007650316fc73f2024-12-13T15:19:03ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312024-12-0119110.1080/17482631.2024.24191652419165Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practiceEmma Powell0Lorayne A Woodfield1Alexander J Powell2Tony D Myers3Miranda Barker4Birmingham Newman UniversityBirmingham Newman UniversityBirmingham Newman UniversityBirmingham Newman UniversityBirmingham Newman UniversityBackground Cystic Fibrosis (CF) is a genetic life limiting disease that impacts upon quality of life. An aim of CF care is to preserve lung function, with physical activity (PA) being an important part of daily airway clearance. Ensuring children have opportunities to engage in PA at school should be an important part of their daily routine. It is important to gain parental perspectives on this, as they manage the daily care for their children. This study aims to explore parents’ perceptions of school-based PA for their children with CF. Methods Parents of children with CF (n = 10), from three regions of the UK (England, Wales and Northern Ireland) took part in online semi-structured interviews. Data were analysed using Interpretative Phenomenological Analysis (IPA). Results Although parents recognized the benefits of school-based PA for their children, systemic barriers in the school setting often inhibit daily PA for children with CF, including teachers’ misconceptions, emotional and physical barriers, and PA not being a priority. Conclusion Recommendations for practice have been developed to help engage children with CF in daily school-based PA in an inclusive way, with the hope of maintaining health outcomes for children with CF.http://dx.doi.org/10.1080/17482631.2024.2419165physical activitycystic fibrosisschoolparentsexperiencesinclusion
spellingShingle Emma Powell
Lorayne A Woodfield
Alexander J Powell
Tony D Myers
Miranda Barker
Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice
International Journal of Qualitative Studies on Health & Well-Being
physical activity
cystic fibrosis
school
parents
experiences
inclusion
title Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice
title_full Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice
title_fullStr Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice
title_full_unstemmed Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice
title_short Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents’ perspectives and recommendations for practice
title_sort are school settings restricting access to daily physical activity for children with cystic fibrosis parents perspectives and recommendations for practice
topic physical activity
cystic fibrosis
school
parents
experiences
inclusion
url http://dx.doi.org/10.1080/17482631.2024.2419165
work_keys_str_mv AT emmapowell areschoolsettingsrestrictingaccesstodailyphysicalactivityforchildrenwithcysticfibrosisparentsperspectivesandrecommendationsforpractice
AT lorayneawoodfield areschoolsettingsrestrictingaccesstodailyphysicalactivityforchildrenwithcysticfibrosisparentsperspectivesandrecommendationsforpractice
AT alexanderjpowell areschoolsettingsrestrictingaccesstodailyphysicalactivityforchildrenwithcysticfibrosisparentsperspectivesandrecommendationsforpractice
AT tonydmyers areschoolsettingsrestrictingaccesstodailyphysicalactivityforchildrenwithcysticfibrosisparentsperspectivesandrecommendationsforpractice
AT mirandabarker areschoolsettingsrestrictingaccesstodailyphysicalactivityforchildrenwithcysticfibrosisparentsperspectivesandrecommendationsforpractice