Healthcare experiences of patients with chronic heart failure in Germany: a scoping review

Objectives To review systematically the past 10 years of research activity into the healthcare experiences (HCX) of patients with chronic heart failure (CHF) in Germany, in order to identify research foci and gaps and make recommendations for future research.Design In this scoping review, six databa...

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Main Authors: Mirjam Dieckelmann, Felix Reinhardt, Klaus Jeitler, Thomas Semlitsch, Jasper Plath, Ferdinand M Gerlach, Andrea Siebenhofer, Juliana J Petersen, Corina Güthlin
Format: Article
Language:English
Published: BMJ Publishing Group 2020-10-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/10/10/e037158.full
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author Mirjam Dieckelmann
Felix Reinhardt
Klaus Jeitler
Thomas Semlitsch
Jasper Plath
Ferdinand M Gerlach
Andrea Siebenhofer
Juliana J Petersen
Corina Güthlin
author_facet Mirjam Dieckelmann
Felix Reinhardt
Klaus Jeitler
Thomas Semlitsch
Jasper Plath
Ferdinand M Gerlach
Andrea Siebenhofer
Juliana J Petersen
Corina Güthlin
author_sort Mirjam Dieckelmann
collection DOAJ
description Objectives To review systematically the past 10 years of research activity into the healthcare experiences (HCX) of patients with chronic heart failure (CHF) in Germany, in order to identify research foci and gaps and make recommendations for future research.Design In this scoping review, six databases and grey literature sources were systematically searched for articles reporting HCX of patients with CHF in Germany that were published between 2008 and 2018. Extracted results were summarised using quantitative and qualitative descriptive analysis.Results Of the 18 studies (100%) that met the inclusion criteria, most were observational studies (60%) that evaluated findings quantitatively (60%). HCX were often concerned with patient information, global satisfaction as well as relationships and communication between patients and providers and generally covered ambulatory care, hospital care and rehabilitation services. Overall, the considerable heterogeneity of the included studies’ outcomes only permitted relatively trivial levels of synthesis.Conclusion In Germany, research on HCX of patients with CHF is characterised by missing, inadequate and insufficient information. Future research would benefit from qualitative analyses, evidence syntheses, longitudinal analyses that investigate HCX throughout the disease trajectory, and better reporting of sociodemographic data. Furthermore, research should include studies that are based on digital data, reports of experiences gained in under-investigated yet patient-relevant healthcare settings and include more female subjects.
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spelling doaj-art-d77948c7e80d4aada1f661d6e7a642c72024-11-17T02:00:09ZengBMJ Publishing GroupBMJ Open2044-60552020-10-01101010.1136/bmjopen-2020-037158Healthcare experiences of patients with chronic heart failure in Germany: a scoping reviewMirjam Dieckelmann0Felix Reinhardt1Klaus Jeitler2Thomas Semlitsch3Jasper Plath4Ferdinand M Gerlach5Andrea Siebenhofer6Juliana J Petersen7Corina Güthlin8Institute of General Practice, Goethe-Universitat Frankfurt am Main, Frankfurt, GermanyInstitute of General Practice, Goethe University Frankfurt, Frankfurt am Main, GermanyInstitute of General Practice and Evidence-based Health Services Research, Medical University of Graz, Graz, AustriaInstitute of General Practice and Evidence-based Health Services Research, Medical University of Graz, Graz, AustriaInstitute of General Practice, Goethe University Frankfurt, Frankfurt am Main, GermanyInstitute of General Practice, Goethe University Frankfurt, Frankfurt am Main, GermanyInstitute of General Practice and Evidence-based Health Services Research, Medical University of Graz, Graz, AustriaInstitute of General Practice, Goethe University Frankfurt, Frankfurt am Main, GermanyInstitute of General Practice, Goethe University Frankfurt, Frankfurt am Main, GermanyObjectives To review systematically the past 10 years of research activity into the healthcare experiences (HCX) of patients with chronic heart failure (CHF) in Germany, in order to identify research foci and gaps and make recommendations for future research.Design In this scoping review, six databases and grey literature sources were systematically searched for articles reporting HCX of patients with CHF in Germany that were published between 2008 and 2018. Extracted results were summarised using quantitative and qualitative descriptive analysis.Results Of the 18 studies (100%) that met the inclusion criteria, most were observational studies (60%) that evaluated findings quantitatively (60%). HCX were often concerned with patient information, global satisfaction as well as relationships and communication between patients and providers and generally covered ambulatory care, hospital care and rehabilitation services. Overall, the considerable heterogeneity of the included studies’ outcomes only permitted relatively trivial levels of synthesis.Conclusion In Germany, research on HCX of patients with CHF is characterised by missing, inadequate and insufficient information. Future research would benefit from qualitative analyses, evidence syntheses, longitudinal analyses that investigate HCX throughout the disease trajectory, and better reporting of sociodemographic data. Furthermore, research should include studies that are based on digital data, reports of experiences gained in under-investigated yet patient-relevant healthcare settings and include more female subjects.https://bmjopen.bmj.com/content/10/10/e037158.full
spellingShingle Mirjam Dieckelmann
Felix Reinhardt
Klaus Jeitler
Thomas Semlitsch
Jasper Plath
Ferdinand M Gerlach
Andrea Siebenhofer
Juliana J Petersen
Corina Güthlin
Healthcare experiences of patients with chronic heart failure in Germany: a scoping review
BMJ Open
title Healthcare experiences of patients with chronic heart failure in Germany: a scoping review
title_full Healthcare experiences of patients with chronic heart failure in Germany: a scoping review
title_fullStr Healthcare experiences of patients with chronic heart failure in Germany: a scoping review
title_full_unstemmed Healthcare experiences of patients with chronic heart failure in Germany: a scoping review
title_short Healthcare experiences of patients with chronic heart failure in Germany: a scoping review
title_sort healthcare experiences of patients with chronic heart failure in germany a scoping review
url https://bmjopen.bmj.com/content/10/10/e037158.full
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