Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities

Background: Persons with intellectual and developmental disabilities (IDD) suffer from stark, well-documented health and healthcare disparities, despite data indicating that the majority see a healthcare provider at least annually. Multiple surveys have indicated that over 90% of physicians feel the...

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Main Authors: Priyanka R. Dharampuriya, Neha Singh, Susan L. Abend
Format: Article
Language:English
Published: Wolters Kluwer Medknow Publications 2023-09-01
Series:Journal of Family Medicine and Primary Care
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Online Access:https://journals.lww.com/10.4103/jfmpc.jfmpc_226_23
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author Priyanka R. Dharampuriya
Neha Singh
Susan L. Abend
author_facet Priyanka R. Dharampuriya
Neha Singh
Susan L. Abend
author_sort Priyanka R. Dharampuriya
collection DOAJ
description Background: Persons with intellectual and developmental disabilities (IDD) suffer from stark, well-documented health and healthcare disparities, despite data indicating that the majority see a healthcare provider at least annually. Multiple surveys have indicated that over 90% of physicians feel they have inadequate knowledge and skill in caring for those with IDD. This has been recognized as a key barrier to health equity. Objective: To evaluate the content of high-impact clinical literature for a potential cause of clinician knowledge deficits. Methods: We performed a bibliometric analysis of publications within major, high-impact general, and specialty clinical journals from 1946 to 2020 to determine the relative frequency of publications regarding IDD and publication rate. Results: We observed a significant decline in articles regarding IDD over the past 20 years within high-impact general medical journals, and a significant decline over the past 15 years within high-impact, specialty society-published journals of Psychiatry, Psychology, and Neurology. Furthermore, we observed that high-impact general medical journals devoted a significantly smaller proportion of publication space to articles regarding IDD than they did for conditions with similar prevalence such as HIV/AIDS, breast cancer, and drug abuse. Conclusion: The declining rate and low frequency of clinical publications regarding IDD within the major, respected clinical literature may be contributing to physicians’ ability to source evidence-based information, thereby impacting perceptions of skill and knowledge deficits, and therefore may be contributing to healthcare disparities in this population. Well-designed clinical studies that engage persons with IDD may lead to an evidence base within the clinical literature that will improve physician confidence and care quality.
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spelling doaj-art-d7563cee6b334a5c93e528e13ecd4d962024-11-11T11:10:56ZengWolters Kluwer Medknow PublicationsJournal of Family Medicine and Primary Care2249-48632278-71352023-09-011291871187810.4103/jfmpc.jfmpc_226_23Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilitiesPriyanka R. DharampuriyaNeha SinghSusan L. AbendBackground: Persons with intellectual and developmental disabilities (IDD) suffer from stark, well-documented health and healthcare disparities, despite data indicating that the majority see a healthcare provider at least annually. Multiple surveys have indicated that over 90% of physicians feel they have inadequate knowledge and skill in caring for those with IDD. This has been recognized as a key barrier to health equity. Objective: To evaluate the content of high-impact clinical literature for a potential cause of clinician knowledge deficits. Methods: We performed a bibliometric analysis of publications within major, high-impact general, and specialty clinical journals from 1946 to 2020 to determine the relative frequency of publications regarding IDD and publication rate. Results: We observed a significant decline in articles regarding IDD over the past 20 years within high-impact general medical journals, and a significant decline over the past 15 years within high-impact, specialty society-published journals of Psychiatry, Psychology, and Neurology. Furthermore, we observed that high-impact general medical journals devoted a significantly smaller proportion of publication space to articles regarding IDD than they did for conditions with similar prevalence such as HIV/AIDS, breast cancer, and drug abuse. Conclusion: The declining rate and low frequency of clinical publications regarding IDD within the major, respected clinical literature may be contributing to physicians’ ability to source evidence-based information, thereby impacting perceptions of skill and knowledge deficits, and therefore may be contributing to healthcare disparities in this population. Well-designed clinical studies that engage persons with IDD may lead to an evidence base within the clinical literature that will improve physician confidence and care quality.https://journals.lww.com/10.4103/jfmpc.jfmpc_226_23bibliometric analysisdevelopmental disabilitieshealth disparitieshealth equityintellectual disabilitiesmedical education
spellingShingle Priyanka R. Dharampuriya
Neha Singh
Susan L. Abend
Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities
Journal of Family Medicine and Primary Care
bibliometric analysis
developmental disabilities
health disparities
health equity
intellectual disabilities
medical education
title Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities
title_full Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities
title_fullStr Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities
title_full_unstemmed Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities
title_short Declining high-impact clinical publication rate: A potential contributor to health disparities among persons with developmental and intellectual disabilities
title_sort declining high impact clinical publication rate a potential contributor to health disparities among persons with developmental and intellectual disabilities
topic bibliometric analysis
developmental disabilities
health disparities
health equity
intellectual disabilities
medical education
url https://journals.lww.com/10.4103/jfmpc.jfmpc_226_23
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AT susanlabend declininghighimpactclinicalpublicationrateapotentialcontributortohealthdisparitiesamongpersonswithdevelopmentalandintellectualdisabilities