Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐life

Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐life

Abstract Background Patient and public involvement (PPI) is a critical priority in research, policy, academia and advocacy organizations. PPI in dementia research is gaining momentum. However, these efforts are missing in international projects aimed at those living with advanced dementia in long‐te...

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Main Authors: Shirin Vellani, Marie‐Lee Yous, Vanessa Maradiaga Rivas, Stephanie Lucchese, Julia Kruizinga, Tamara Sussman, Julia Abelson, Noori Akhtar‐Danesh, Gina Bravo, Kevin Brazil, Rebecca Ganann, Sharon Kaasalainen
Format: Article
Language:English
Published: Wiley 2024-02-01
Series:Health Expectations
Subjects:
dementia
end‐of‐life
interpretive description
palliative approach
patient and public involvement
reflexive thematic analysis
Online Access:https://doi.org/10.1111/hex.13942
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https://doi.org/10.1111/hex.13942

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