Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study
Background: Improving interactions between people receiving hemodialysis and health care providers of facility-based hemodialysis care is a top priority for patients, caregivers, and health care providers. Objective: To identify challenges for high-quality clinical interactions in facility-based hem...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2025-01-01
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| Series: | Canadian Journal of Kidney Health and Disease |
| Online Access: | https://doi.org/10.1177/20543581241309986 |
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| author | Melanie D. Talson Priscila Ferreira da Silva Juli Finlay Krista Rossum Kaytlynn V. Soroka Michael McCormick Arlene Desjarlais Hans Vorster Rachelle Sass Matthew James Manish M. Sood Allison Jaure Neesh Pannu Karthik Tennankore Stephanie Thompson Marcello Tonelli Clara Bohm |
| author_facet | Melanie D. Talson Priscila Ferreira da Silva Juli Finlay Krista Rossum Kaytlynn V. Soroka Michael McCormick Arlene Desjarlais Hans Vorster Rachelle Sass Matthew James Manish M. Sood Allison Jaure Neesh Pannu Karthik Tennankore Stephanie Thompson Marcello Tonelli Clara Bohm |
| author_sort | Melanie D. Talson |
| collection | DOAJ |
| description | Background: Improving interactions between people receiving hemodialysis and health care providers of facility-based hemodialysis care is a top priority for patients, caregivers, and health care providers. Objective: To identify challenges for high-quality clinical interactions in facility-based hemodialysis care as well as potential solutions. Design: Multicentre qualitative study using focus groups and semi-structured interviews to elicit the perspectives of patients, caregivers, and health care providers. Setting: Five Canadian facility-based hemodialysis centers. Participants: English-speaking adults receiving facility-based hemodialysis for longer than 6 months, their caregivers, and hemodialysis health care providers. Methods: Between May 2017 and August 2018, focus groups and interviews with patients and their caregivers subsequently informed semi-structured interviews with providers. Data were analyzed using inductive thematic analysis with application of a grounded theory approach. Results: A total of 8 focus groups and 44 interviews were completed. Participants included 64 people receiving hemodialysis, 18 caregivers, and 31 health care providers. Communication between health care providers and patients was often characterized as intersections of care (unidirectional) rather than interactions (bidirectional). Challenges were grouped into 4 main themes as follows: (1) culture of care provision; (2) mistrust between patients and health care providers; (3) time constraints for clinical interactions, and (4) lack of collaboration and care coordination among health care team. Potential solutions were identified for each challenge. Limitations: Findings were limited to Canadian context, English-speaking adults, and individuals receiving facility-based hemodialysis in urban centers. Conclusions: Interactions between health care providers and people receiving dialysis are often unidirectional, where the patient is a passive recipient of ideas and information from the health care provider. To promote improved bidirectional interactions, team-based care that includes better tools to improve information transfer, better information regarding roles, and identity of health care team members and opportunities for all members of the health care team, including the people receiving dialysis, to provide input on care plans is required. Trial Registration: Not applicable. |
| format | Article |
| id | doaj-art-d62ed6f95fcc47beb624058d43bdcbdf |
| institution | Kabale University |
| issn | 2054-3581 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Canadian Journal of Kidney Health and Disease |
| spelling | doaj-art-d62ed6f95fcc47beb624058d43bdcbdf2025-01-03T12:03:24ZengSAGE PublishingCanadian Journal of Kidney Health and Disease2054-35812025-01-011210.1177/20543581241309986Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative StudyMelanie D. Talson0Priscila Ferreira da Silva1Juli Finlay2Krista Rossum3Kaytlynn V. Soroka4Michael McCormick5Arlene Desjarlais6Hans Vorster7Rachelle Sass8Matthew James9Manish M. Sood10Allison Jaure11Neesh Pannu12Karthik Tennankore13Stephanie Thompson14Marcello Tonelli15Clara Bohm16Max Rady College of Medicine, University of Manitoba, Winnipeg, CanadaMax Rady College of Medicine, University of Manitoba, Winnipeg, CanadaCumming School of Medicine, University of Calgary, AB, CanadaMax Rady College of Medicine, University of Manitoba, Winnipeg, CanadaCumming School of Medicine, University of Calgary, AB, CanadaPatient Governance Council, Can-Solve CKD Network, Winnipeg, MB, CanadaIndigenous Peoples’ Engagement and Research Council, Can-SOLVE CKD Network, Winnipeg, MB, CanadaPatient Governance Council, Can-Solve CKD Network, Winnipeg, MB, CanadaMax Rady College of Medicine, University of Manitoba, Winnipeg, CanadaCumming School of Medicine, University of Calgary, AB, CanadaDepartment of Medicine, Ottawa Hospital Research Institute, The University of Ottawa, ON, CanadaFaculty of Medicine and Health, Sydney School of Public Health, The University of Sydney, NSW, AustraliaDepartment of Medicine, University of Alberta, Edmonton, CanadaDepartment of Medicine, Dalhousie University, Halifax, NS, CanadaDepartment of Medicine, University of Alberta, Edmonton, CanadaCumming School of Medicine, University of Calgary, AB, CanadaChronic Disease Innovation Centre, Seven Oaks General Hospital, Winnipeg, MB, CanadaBackground: Improving interactions between people receiving hemodialysis and health care providers of facility-based hemodialysis care is a top priority for patients, caregivers, and health care providers. Objective: To identify challenges for high-quality clinical interactions in facility-based hemodialysis care as well as potential solutions. Design: Multicentre qualitative study using focus groups and semi-structured interviews to elicit the perspectives of patients, caregivers, and health care providers. Setting: Five Canadian facility-based hemodialysis centers. Participants: English-speaking adults receiving facility-based hemodialysis for longer than 6 months, their caregivers, and hemodialysis health care providers. Methods: Between May 2017 and August 2018, focus groups and interviews with patients and their caregivers subsequently informed semi-structured interviews with providers. Data were analyzed using inductive thematic analysis with application of a grounded theory approach. Results: A total of 8 focus groups and 44 interviews were completed. Participants included 64 people receiving hemodialysis, 18 caregivers, and 31 health care providers. Communication between health care providers and patients was often characterized as intersections of care (unidirectional) rather than interactions (bidirectional). Challenges were grouped into 4 main themes as follows: (1) culture of care provision; (2) mistrust between patients and health care providers; (3) time constraints for clinical interactions, and (4) lack of collaboration and care coordination among health care team. Potential solutions were identified for each challenge. Limitations: Findings were limited to Canadian context, English-speaking adults, and individuals receiving facility-based hemodialysis in urban centers. Conclusions: Interactions between health care providers and people receiving dialysis are often unidirectional, where the patient is a passive recipient of ideas and information from the health care provider. To promote improved bidirectional interactions, team-based care that includes better tools to improve information transfer, better information regarding roles, and identity of health care team members and opportunities for all members of the health care team, including the people receiving dialysis, to provide input on care plans is required. Trial Registration: Not applicable.https://doi.org/10.1177/20543581241309986 |
| spellingShingle | Melanie D. Talson Priscila Ferreira da Silva Juli Finlay Krista Rossum Kaytlynn V. Soroka Michael McCormick Arlene Desjarlais Hans Vorster Rachelle Sass Matthew James Manish M. Sood Allison Jaure Neesh Pannu Karthik Tennankore Stephanie Thompson Marcello Tonelli Clara Bohm Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study Canadian Journal of Kidney Health and Disease |
| title | Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study |
| title_full | Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study |
| title_fullStr | Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study |
| title_full_unstemmed | Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study |
| title_short | Patient, Caregiver, and Provider Perspectives on Improving Provider-Patient Interactions in Hemodialysis: A Qualitative Study |
| title_sort | patient caregiver and provider perspectives on improving provider patient interactions in hemodialysis a qualitative study |
| url | https://doi.org/10.1177/20543581241309986 |
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