Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research
Purpose The East London Health and Care Partnership (ELHCP) Data Repository was established to support commissioning decisions in London. This dataset comprises routine clinical data for the general practitioner (GP)-registered populations of two London boroughs, Tower Hamlets and City and Hackney,...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2020-09-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/10/9/e037183.full |
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| author | George Howard Kamaldeep Bhui Amy Ronaldson Evangelos Chandakas Qiongwen Kang Katie Brennan Aminat Akande Irene Ebyarimpa Eleanor Wyllie Richard Fradgley Mark Freestone |
| author_facet | George Howard Kamaldeep Bhui Amy Ronaldson Evangelos Chandakas Qiongwen Kang Katie Brennan Aminat Akande Irene Ebyarimpa Eleanor Wyllie Richard Fradgley Mark Freestone |
| author_sort | George Howard |
| collection | DOAJ |
| description | Purpose The East London Health and Care Partnership (ELHCP) Data Repository was established to support commissioning decisions in London. This dataset comprises routine clinical data for the general practitioner (GP)-registered populations of two London boroughs, Tower Hamlets and City and Hackney, and provides a rich source of demographic, clinical and health service use data of relevance to clinicians, commissioners, researchers and policy makers. This paper describes the dataset in its current form, its representativeness and data completeness.Participants There were 351 749 and 344 511 members of the GP-registered population in the two boroughs, respectively, for the financial year 2017/2018. Demographic information and prevalence data were available for 9 mental health and 15 physical health conditions. Prevalence rates from the cohort were compared with local and national data. In order to illustrate the health service use data available in the dataset, emergency department use across mental health conditions was described. Information about data completeness was provided.Findings to date The ELHCP Data Repository provides a rich source of information about a relatively young, urban, ethnically diverse, population within areas of socioeconomic deprivation. Prevalence data were in line with local and national statistics with some exceptions. Physical health conditions were more common in those with mental health conditions, reflecting that comorbidities are the norm rather than the exception. This has implications for integrated care. Data completeness for risk factors (eg, blood pressure, cholesterol) was high in patients with long-term conditions.Future plans The data are being further cleaned and evaluated using imputation, Bayesian and economic methods, principally focusing on specific cohorts, including type II diabetes, depression and personality disorder. Data continue to be collected for the foreseeable future to support commissioning decisions, which will also enable more long-term prospective analysis as data become available at the end of each financial year. |
| format | Article |
| id | doaj-art-d4391e9956d74ff288fd3a02254a0323 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-09-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-d4391e9956d74ff288fd3a02254a03232025-01-08T12:35:14ZengBMJ Publishing GroupBMJ Open2044-60552020-09-0110910.1136/bmjopen-2020-037183Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and researchGeorge Howard0Kamaldeep Bhui1Amy Ronaldson2Evangelos Chandakas3Qiongwen Kang4Katie Brennan5Aminat Akande6Irene Ebyarimpa7Eleanor Wyllie8Richard Fradgley9Mark Freestone10Division of Preventive Medicine, Heersink School of Medicine, University of Alabama at Birmingham, Birmingham, UKprofessor of psychiatry4 Health Services and Policy Research Department, King`s College London, London, UKNHS Tower Hamlets Clinical Commissioning Group, London, London, UKNHS Tower Hamlets Clinical Commissioning Group, London, London, UKNHS Tower Hamlets Clinical Commissioning Group, London, London, UKNHS Tower Hamlets Clinical Commissioning Group, London, London, UKNHS Tower Hamlets Clinical Commissioning Group, London, London, UK1Evelina LondonEast London NHS Foundation Trust, London, London, UK1 Wolfson Institute of Population Health, Queen Mary University of London, London, UKPurpose The East London Health and Care Partnership (ELHCP) Data Repository was established to support commissioning decisions in London. This dataset comprises routine clinical data for the general practitioner (GP)-registered populations of two London boroughs, Tower Hamlets and City and Hackney, and provides a rich source of demographic, clinical and health service use data of relevance to clinicians, commissioners, researchers and policy makers. This paper describes the dataset in its current form, its representativeness and data completeness.Participants There were 351 749 and 344 511 members of the GP-registered population in the two boroughs, respectively, for the financial year 2017/2018. Demographic information and prevalence data were available for 9 mental health and 15 physical health conditions. Prevalence rates from the cohort were compared with local and national data. In order to illustrate the health service use data available in the dataset, emergency department use across mental health conditions was described. Information about data completeness was provided.Findings to date The ELHCP Data Repository provides a rich source of information about a relatively young, urban, ethnically diverse, population within areas of socioeconomic deprivation. Prevalence data were in line with local and national statistics with some exceptions. Physical health conditions were more common in those with mental health conditions, reflecting that comorbidities are the norm rather than the exception. This has implications for integrated care. Data completeness for risk factors (eg, blood pressure, cholesterol) was high in patients with long-term conditions.Future plans The data are being further cleaned and evaluated using imputation, Bayesian and economic methods, principally focusing on specific cohorts, including type II diabetes, depression and personality disorder. Data continue to be collected for the foreseeable future to support commissioning decisions, which will also enable more long-term prospective analysis as data become available at the end of each financial year.https://bmjopen.bmj.com/content/10/9/e037183.full |
| spellingShingle | George Howard Kamaldeep Bhui Amy Ronaldson Evangelos Chandakas Qiongwen Kang Katie Brennan Aminat Akande Irene Ebyarimpa Eleanor Wyllie Richard Fradgley Mark Freestone Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research BMJ Open |
| title | Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research |
| title_full | Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research |
| title_fullStr | Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research |
| title_full_unstemmed | Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research |
| title_short | Cohort profile: the East London Health and Care Partnership Data Repository: using novel integrated data to support commissioning and research |
| title_sort | cohort profile the east london health and care partnership data repository using novel integrated data to support commissioning and research |
| url | https://bmjopen.bmj.com/content/10/9/e037183.full |
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