“I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test

Abstract Background According to recent estimates, around 30 million people have taken Direct-to-Consumer DNA ancestry tests, typically marketed as a fun, harmless and exciting process of discovery. These tests estimate a user’s ethnic ancestry, also matching users with biological relations on their...

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Main Authors: Juliette Careau, Maarten H.D. Larmuseau, Rebekah Drumsta, Rob Whitley
Format: Article
Language:English
Published: BMC 2025-01-01
Series:BMC Psychiatry
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Online Access:https://doi.org/10.1186/s12888-024-06380-0
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author Juliette Careau
Maarten H.D. Larmuseau
Rebekah Drumsta
Rob Whitley
author_facet Juliette Careau
Maarten H.D. Larmuseau
Rebekah Drumsta
Rob Whitley
author_sort Juliette Careau
collection DOAJ
description Abstract Background According to recent estimates, around 30 million people have taken Direct-to-Consumer DNA ancestry tests, typically marketed as a fun, harmless and exciting process of discovery. These tests estimate a user’s ethnic ancestry, also matching users with biological relations on their database. This matching can produce a surprising ‘not parent expected’ discovery, where a user learns that an assumed parent (typically the father) is not a biological parent. Such news may negatively affect mental health, self-identity and familial relationships, while prompting the utilization of putatively helpful resources by affected individuals. However, there is a lack of research on this topic. Thus, this study aimed to document the psychosocial experience of adults who have learnt that an assumed parent is not a biological parent via a Direct-to-Consumer DNA ancestry test. Specific objectives include investigating and understanding impact on mental health, familial relationships and subsequent resources mobilized. Methods To meet these objectives, we conducted an inductive qualitative study, allowing for the documentation of common experiences and perspectives. This involved 52 semi-structured interviews with affected individuals, analyzed using thematic analysis. Results This resulted in five overlapping themes, namely (i) participants typically described their experience as an extraordinary shock that had a negative impact on their mental health, with some exceptions; (ii) the experience typically led to a severe and troubling disruption of their self-identity, with some exceptions; (iii) the news often ruptured extant familial relationships, especially with the mother, and any experiences with the new biological family were mixed; (iv) participants sought support from a variety of resources including spouses, siblings, and online peer support groups, which were generally considered helpful, with some exceptions; and (v) many participants consulted mental health professionals, who were sometimes considered supportive, but some participants noted that they were ill-equipped to help. Common across these themes were issues of grief, loss and trauma. Conclusions This study reveals an expanding, vulnerable, and under-researched population facing unique stressors, that may be at high risk of developing a psychiatric disorder. There is a need for new services and supports for this population including tailored clinical interventions and specific self-care resources.
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spelling doaj-art-d0632a9a601b4d5ea4b9275d94f8a84c2025-01-12T12:34:24ZengBMCBMC Psychiatry1471-244X2025-01-0125111610.1186/s12888-024-06380-0“I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry testJuliette Careau0Maarten H.D. Larmuseau1Rebekah Drumsta2Rob Whitley3Department of Psychiatry, Douglas Research Centre, McGill UniversityLaboratory of Human Genetic Genealogy, Department of Human Genetics, KU LeuvenNPE NetworkDepartment of Psychiatry, Douglas Research Centre, McGill UniversityAbstract Background According to recent estimates, around 30 million people have taken Direct-to-Consumer DNA ancestry tests, typically marketed as a fun, harmless and exciting process of discovery. These tests estimate a user’s ethnic ancestry, also matching users with biological relations on their database. This matching can produce a surprising ‘not parent expected’ discovery, where a user learns that an assumed parent (typically the father) is not a biological parent. Such news may negatively affect mental health, self-identity and familial relationships, while prompting the utilization of putatively helpful resources by affected individuals. However, there is a lack of research on this topic. Thus, this study aimed to document the psychosocial experience of adults who have learnt that an assumed parent is not a biological parent via a Direct-to-Consumer DNA ancestry test. Specific objectives include investigating and understanding impact on mental health, familial relationships and subsequent resources mobilized. Methods To meet these objectives, we conducted an inductive qualitative study, allowing for the documentation of common experiences and perspectives. This involved 52 semi-structured interviews with affected individuals, analyzed using thematic analysis. Results This resulted in five overlapping themes, namely (i) participants typically described their experience as an extraordinary shock that had a negative impact on their mental health, with some exceptions; (ii) the experience typically led to a severe and troubling disruption of their self-identity, with some exceptions; (iii) the news often ruptured extant familial relationships, especially with the mother, and any experiences with the new biological family were mixed; (iv) participants sought support from a variety of resources including spouses, siblings, and online peer support groups, which were generally considered helpful, with some exceptions; and (v) many participants consulted mental health professionals, who were sometimes considered supportive, but some participants noted that they were ill-equipped to help. Common across these themes were issues of grief, loss and trauma. Conclusions This study reveals an expanding, vulnerable, and under-researched population facing unique stressors, that may be at high risk of developing a psychiatric disorder. There is a need for new services and supports for this population including tailored clinical interventions and specific self-care resources.https://doi.org/10.1186/s12888-024-06380-0DTC DNA ancestry testingFamily relationshipsNot parent expectedMisattributed paternityMental healthSelf-identity
spellingShingle Juliette Careau
Maarten H.D. Larmuseau
Rebekah Drumsta
Rob Whitley
“I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test
BMC Psychiatry
DTC DNA ancestry testing
Family relationships
Not parent expected
Misattributed paternity
Mental health
Self-identity
title “I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test
title_full “I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test
title_fullStr “I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test
title_full_unstemmed “I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test
title_short “I’m trying to figure out who the hell I am”: Examining the psychosocial and mental health experience of individuals learning “Not Parent Expected” news from a direct-to-consumer DNA ancestry test
title_sort i m trying to figure out who the hell i am examining the psychosocial and mental health experience of individuals learning not parent expected news from a direct to consumer dna ancestry test
topic DTC DNA ancestry testing
Family relationships
Not parent expected
Misattributed paternity
Mental health
Self-identity
url https://doi.org/10.1186/s12888-024-06380-0
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