Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study
Abstract Patient involvement is crucial in healthcare, a factor increasingly recognised by life sciences companies and research institutes. This article presents a case study on Servier, a life sciences company that founded a patient expert board, ahead of launching a new research and development (R...
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| Format: | Article |
| Language: | English |
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BMC
2024-11-01
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| Series: | Research Involvement and Engagement |
| Online Access: | https://doi.org/10.1186/s40900-024-00631-w |
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| author | Estelle Jobson Marta Garcia Danika Sharek Laura Risueño Sylvain Arnould Aude Lemoine-André Jan Geissler Ana Amariutei Sabrina Grigolo Begonya Nafria Escalera Thomas Smith Oriana Sousa Linda Stone Janet West |
| author_facet | Estelle Jobson Marta Garcia Danika Sharek Laura Risueño Sylvain Arnould Aude Lemoine-André Jan Geissler Ana Amariutei Sabrina Grigolo Begonya Nafria Escalera Thomas Smith Oriana Sousa Linda Stone Janet West |
| author_sort | Estelle Jobson |
| collection | DOAJ |
| description | Abstract Patient involvement is crucial in healthcare, a factor increasingly recognised by life sciences companies and research institutes. This article presents a case study on Servier, a life sciences company that founded a patient expert board, ahead of launching a new research and development (R&D) institute. The aim was to foster a patient-centric culture within the company. The case study explores key developments in patient and public involvement, emphasising a shift from paternalistic to patient-centred approaches, noting few available case studies on patient board collaborations in life sciences. It outlines the evolution of the board, its impact, and practical lessons learned, with related recommendations. The patient board resulted from a three-way collaboration between the company, Patvocates (a patient consultancy), and patient experts recruited. The patient consultancy played a crucial role in project management, governance, and facilitating relationships. The case study provides the context, timeframe, foundations laid, engagement of patient experts, and foundational values, including: co-creation, fair market value remuneration, voluntary participation, and patient-centric meeting protocol. Eighteen patient experts, representing ten disease areas and ten European countries, joined the board and helped prioritise and co-create projects. Ideas for activities were sourced from brainstorming sessions and an in-company challenge. The collaboration yielded five core ideas, each forming a working group. The study describes the groups and their outputs: a patient advisory council, an interactive gallery of patient experience in R&D, patient engagement and entrepreneurship in life sciences, creating patient-focused decentralised trials (DCTs), and staff training on patient engagement. The article emphasises how the organic evolution of the collaboration led to significant insights. Hurdles faced by the company included: upstream planning, cross-company buy-in, compliance, and internal resource allocation. Recommendations for the wider community included: identifying and contracting patient partners; clarifying roles; managing expectations; building trust; logistics; and sustainability. This case study presents a practical, positive example of patient engagement within a life sciences company, offering insights into the establishing, running, and the impact of collaborating with a patient expert board. Lessons learned and recommendations may serve as a model for other companies seeking to engage with patients and evolve towards a more patient-centric approach in their strategies. |
| format | Article |
| id | doaj-art-c87312c3da6a43378c6ba6c948b97f40 |
| institution | Kabale University |
| issn | 2056-7529 |
| language | English |
| publishDate | 2024-11-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj-art-c87312c3da6a43378c6ba6c948b97f402024-11-10T12:46:45ZengBMCResearch Involvement and Engagement2056-75292024-11-0110111710.1186/s40900-024-00631-wEmbedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case studyEstelle Jobson0Marta Garcia1Danika Sharek2Laura Risueño3Sylvain Arnould4Aude Lemoine-André5Jan Geissler6Ana Amariutei7Sabrina Grigolo8Begonya Nafria Escalera9Thomas Smith10Oriana Sousa11Linda Stone12Janet West13EUPATI FellowInstitut de Recherches Internationales Servier IRISPatvocatesInstitut de Recherches Internationales Servier IRISInstitut de Recherches Internationales Servier IRISInstitut de Recherches Internationales Servier IRISPatvocatesEUPATI FellowEUPATI FellowInstitut de Recerca Sant Joan de DéuEUPATI FellowEUPATI FellowSjögren’s UK (Previously British Sjögren’s Syndrome Association)Independent Patient ExpertAbstract Patient involvement is crucial in healthcare, a factor increasingly recognised by life sciences companies and research institutes. This article presents a case study on Servier, a life sciences company that founded a patient expert board, ahead of launching a new research and development (R&D) institute. The aim was to foster a patient-centric culture within the company. The case study explores key developments in patient and public involvement, emphasising a shift from paternalistic to patient-centred approaches, noting few available case studies on patient board collaborations in life sciences. It outlines the evolution of the board, its impact, and practical lessons learned, with related recommendations. The patient board resulted from a three-way collaboration between the company, Patvocates (a patient consultancy), and patient experts recruited. The patient consultancy played a crucial role in project management, governance, and facilitating relationships. The case study provides the context, timeframe, foundations laid, engagement of patient experts, and foundational values, including: co-creation, fair market value remuneration, voluntary participation, and patient-centric meeting protocol. Eighteen patient experts, representing ten disease areas and ten European countries, joined the board and helped prioritise and co-create projects. Ideas for activities were sourced from brainstorming sessions and an in-company challenge. The collaboration yielded five core ideas, each forming a working group. The study describes the groups and their outputs: a patient advisory council, an interactive gallery of patient experience in R&D, patient engagement and entrepreneurship in life sciences, creating patient-focused decentralised trials (DCTs), and staff training on patient engagement. The article emphasises how the organic evolution of the collaboration led to significant insights. Hurdles faced by the company included: upstream planning, cross-company buy-in, compliance, and internal resource allocation. Recommendations for the wider community included: identifying and contracting patient partners; clarifying roles; managing expectations; building trust; logistics; and sustainability. This case study presents a practical, positive example of patient engagement within a life sciences company, offering insights into the establishing, running, and the impact of collaborating with a patient expert board. Lessons learned and recommendations may serve as a model for other companies seeking to engage with patients and evolve towards a more patient-centric approach in their strategies.https://doi.org/10.1186/s40900-024-00631-w |
| spellingShingle | Estelle Jobson Marta Garcia Danika Sharek Laura Risueño Sylvain Arnould Aude Lemoine-André Jan Geissler Ana Amariutei Sabrina Grigolo Begonya Nafria Escalera Thomas Smith Oriana Sousa Linda Stone Janet West Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study Research Involvement and Engagement |
| title | Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study |
| title_full | Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study |
| title_fullStr | Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study |
| title_full_unstemmed | Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study |
| title_short | Embedding patient engagement in the R&D process of a life sciences company through co-creation with a patient expert R&D board: a case study |
| title_sort | embedding patient engagement in the r d process of a life sciences company through co creation with a patient expert r d board a case study |
| url | https://doi.org/10.1186/s40900-024-00631-w |
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