A family caregiver perspective: rethinking recovery with phenomenology

Our phenomenal experience of the world is shaped by lived moments of the present, which not only sediment into the fabric of our current reality but also actively contribute to shaping it. We continually engage in the generative and rich making of life through this ongoing, dynamic interaction with...

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Main Author: Junyu Ke
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-01-01
Series:Frontiers in Sociology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fsoc.2025.1509351/full
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author Junyu Ke
author_facet Junyu Ke
author_sort Junyu Ke
collection DOAJ
description Our phenomenal experience of the world is shaped by lived moments of the present, which not only sediment into the fabric of our current reality but also actively contribute to shaping it. We continually engage in the generative and rich making of life through this ongoing, dynamic interaction with the world. From this perspective, body–mind differences resulting from brain injury could be seen as a profound transformation of one’s phenomenal experience of the world. The lessons I have drawn from my caregiving experience with my sister who has critical brain injuries highlight the need to move away from ableist beliefs that disabilities are deficits to be corrected or rejected to a positive and generative search for the new, alternative ways of living well with shifted physio-psychological conditions. Using phenomenological perspectives, I aim to shift the understanding of “abnormality” from the binary of normal/abnormal to a broader vision of care. For family caregivers who struggle to help their loved one to return to a better state of health and life quality, the key point of participating in the recovery process is to gear into the lived experience of the care recipient and grasp a genuine understanding of their reality.
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spelling doaj-art-c6f287bc2a8440d6a3bc0ff1d90d80982025-01-17T06:50:48ZengFrontiers Media S.A.Frontiers in Sociology2297-77752025-01-011010.3389/fsoc.2025.15093511509351A family caregiver perspective: rethinking recovery with phenomenologyJunyu KeOur phenomenal experience of the world is shaped by lived moments of the present, which not only sediment into the fabric of our current reality but also actively contribute to shaping it. We continually engage in the generative and rich making of life through this ongoing, dynamic interaction with the world. From this perspective, body–mind differences resulting from brain injury could be seen as a profound transformation of one’s phenomenal experience of the world. The lessons I have drawn from my caregiving experience with my sister who has critical brain injuries highlight the need to move away from ableist beliefs that disabilities are deficits to be corrected or rejected to a positive and generative search for the new, alternative ways of living well with shifted physio-psychological conditions. Using phenomenological perspectives, I aim to shift the understanding of “abnormality” from the binary of normal/abnormal to a broader vision of care. For family caregivers who struggle to help their loved one to return to a better state of health and life quality, the key point of participating in the recovery process is to gear into the lived experience of the care recipient and grasp a genuine understanding of their reality.https://www.frontiersin.org/articles/10.3389/fsoc.2025.1509351/fullphenomenological experiencefamily caregiversocial rolesbody–mindcare
spellingShingle Junyu Ke
A family caregiver perspective: rethinking recovery with phenomenology
Frontiers in Sociology
phenomenological experience
family caregiver
social roles
body–mind
care
title A family caregiver perspective: rethinking recovery with phenomenology
title_full A family caregiver perspective: rethinking recovery with phenomenology
title_fullStr A family caregiver perspective: rethinking recovery with phenomenology
title_full_unstemmed A family caregiver perspective: rethinking recovery with phenomenology
title_short A family caregiver perspective: rethinking recovery with phenomenology
title_sort family caregiver perspective rethinking recovery with phenomenology
topic phenomenological experience
family caregiver
social roles
body–mind
care
url https://www.frontiersin.org/articles/10.3389/fsoc.2025.1509351/full
work_keys_str_mv AT junyuke afamilycaregiverperspectiverethinkingrecoverywithphenomenology
AT junyuke familycaregiverperspectiverethinkingrecoverywithphenomenology