Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units
Background There is a scarcity of information regarding the most important outcomes for research in neonatal units in low-resource settings. Identification of important outcomes by different stakeholder groups would inform the development of a core outcome set (COS) for use in neonatal research.Obje...
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BMJ Publishing Group
2020-02-01
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| Series: | BMJ Paediatrics Open |
| Online Access: | https://bmjpaedsopen.bmj.com/content/4/1/e000669.full |
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| author | Ian Sinha Melissa Gladstone Janneke van de Wijgert Kevin Mortimer Sarah Kathryn Read Aisha Jibril Olukemi Tongo Abimbole Akindolire Isa Abdulkadir Helen Nabwera Stephen Allen Olusegun Akinyinka Dominic Umoru Chinyere Ezeaka Ireti Fajolu Beatrice Ezenwa Zainab Imam Martha Mwangome Alison Talbert Pauline Andang’o Walter Otieno Grace Nalwa Graham Devereux Ismaela Abubakar Nicholas Embleton |
| author_facet | Ian Sinha Melissa Gladstone Janneke van de Wijgert Kevin Mortimer Sarah Kathryn Read Aisha Jibril Olukemi Tongo Abimbole Akindolire Isa Abdulkadir Helen Nabwera Stephen Allen Olusegun Akinyinka Dominic Umoru Chinyere Ezeaka Ireti Fajolu Beatrice Ezenwa Zainab Imam Martha Mwangome Alison Talbert Pauline Andang’o Walter Otieno Grace Nalwa Graham Devereux Ismaela Abubakar Nicholas Embleton |
| author_sort | Ian Sinha |
| collection | DOAJ |
| description | Background There is a scarcity of information regarding the most important outcomes for research in neonatal units in low-resource settings. Identification of important outcomes by different stakeholder groups would inform the development of a core outcome set (COS) for use in neonatal research.Objective To determine the perceptions and opinions of parents of newborn babies regarding what outcomes were most important to them in order to contribute towards development of a COS for neonatal research in sub-Saharan Africa.Methods Semistructured interviews were undertaken with parents, mostly mothers, of babies admitted to one neonatal unit in North central and one in Southwest Nigeria. Participants were purposively sampled to include parents of babies with common neonatal problems such as prematurity.Results We conducted 31 interviews. The most frequently raised outcomes were breast feeding, good health outcomes for their baby, education, growth and financial cost. Parents placed more emphasis on quality of life and functional status than health complications.Conclusions The opinions of parents need to be considered in developing a COS for neonatal research in low-resource settings. Further research should assess the opinions of families in other low-resource settings and also engage a broader range of stakeholders. |
| format | Article |
| id | doaj-art-c4c00f832a184352aabd1a3c39dc9b03 |
| institution | Kabale University |
| issn | 2399-9772 |
| language | English |
| publishDate | 2020-02-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Paediatrics Open |
| spelling | doaj-art-c4c00f832a184352aabd1a3c39dc9b032024-12-01T05:35:07ZengBMJ Publishing GroupBMJ Paediatrics Open2399-97722020-02-014110.1136/bmjpo-2020-000669Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal unitsIan Sinha0Melissa Gladstone1Janneke van de WijgertKevin Mortimer2Sarah Kathryn Read3Aisha Jibril4Olukemi Tongo5Abimbole Akindolire6Isa Abdulkadir7Helen Nabwera8Stephen Allen9Olusegun AkinyinkaDominic UmoruChinyere EzeakaIreti FajoluBeatrice EzenwaZainab ImamMartha Mwangome10Alison Talbert11Pauline Andang’oWalter Otieno12Grace Nalwa13Graham Devereux14Ismaela Abubakar15Nicholas Embleton161 Respiratory Unit, Alder Hey Children`s Hospital, Liverpool, UKInstitute of Translational Medicine, University of Liverpool, Liverpool, UKAintree University Hospitals NHS Foundation Trust, Liverpool, UKDepartment of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, UKDepartment of Paediatrics, Faculty of Clinical Sciences, College of Medical Sciences, Ahmadu Bello University, Zaria, Kaduna, NigeriaDepartment of Paediatrics, College of Medicine, University of Ibadan, Ibadan, Oyo, NigeriaDepartment of Paediatrics, College of Medicine, University of Ibadan, Ibadan, Oyo, NigeriaDepartment of Paediatrics, Ahmadu Bello University Teaching Hospital, Zaria, NigeriaInternational Public Health, Liverpool School of Tropical Medicine, Liverpool, Liverpool, UKDepartment of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, UKKEMRI-Wellcome Trust Research Programme, Kilifi, KenyaClinical Research, KEMRI-Wellcome Trust Research Programme, Kilifi, KenyaDepartment of Paediatrics, Jaramogi Oginga Odinga Teaching and Referral Hospital, Kisumu, Kenya8 Department of Paediatrics and Child Health, Maseno University, Maseno, Nyanza, KenyaDepartment of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, UKDepartment of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, UKDepartment of Neonatology, Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UKBackground There is a scarcity of information regarding the most important outcomes for research in neonatal units in low-resource settings. Identification of important outcomes by different stakeholder groups would inform the development of a core outcome set (COS) for use in neonatal research.Objective To determine the perceptions and opinions of parents of newborn babies regarding what outcomes were most important to them in order to contribute towards development of a COS for neonatal research in sub-Saharan Africa.Methods Semistructured interviews were undertaken with parents, mostly mothers, of babies admitted to one neonatal unit in North central and one in Southwest Nigeria. Participants were purposively sampled to include parents of babies with common neonatal problems such as prematurity.Results We conducted 31 interviews. The most frequently raised outcomes were breast feeding, good health outcomes for their baby, education, growth and financial cost. Parents placed more emphasis on quality of life and functional status than health complications.Conclusions The opinions of parents need to be considered in developing a COS for neonatal research in low-resource settings. Further research should assess the opinions of families in other low-resource settings and also engage a broader range of stakeholders.https://bmjpaedsopen.bmj.com/content/4/1/e000669.full |
| spellingShingle | Ian Sinha Melissa Gladstone Janneke van de Wijgert Kevin Mortimer Sarah Kathryn Read Aisha Jibril Olukemi Tongo Abimbole Akindolire Isa Abdulkadir Helen Nabwera Stephen Allen Olusegun Akinyinka Dominic Umoru Chinyere Ezeaka Ireti Fajolu Beatrice Ezenwa Zainab Imam Martha Mwangome Alison Talbert Pauline Andang’o Walter Otieno Grace Nalwa Graham Devereux Ismaela Abubakar Nicholas Embleton Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units BMJ Paediatrics Open |
| title | Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units |
| title_full | Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units |
| title_fullStr | Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units |
| title_full_unstemmed | Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units |
| title_short | Parents’ perceptions of core outcomes in neonatal research in two Nigerian neonatal units |
| title_sort | parents perceptions of core outcomes in neonatal research in two nigerian neonatal units |
| url | https://bmjpaedsopen.bmj.com/content/4/1/e000669.full |
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