Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network

Multi-site and multi-organizational teams are increasingly common in epidemiologic research; however, there is a lack of standards or best practices for achieving success in collaborative research networks in epidemiology. We summarize our experiences and lessons learned from the Diabetes Location,...

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Main Authors: Tara P. McAlexander, Nora L. Lee, Gina S. Lovasi, Annemarie G. Hirsch, Melissa N. Poulsen, Brian Elbel, Lorna E. Thorpe, D. Leann Long, Leslie A. McClure
Format: Article
Language:English
Published: Cambridge University Press 2025-01-01
Series:Journal of Clinical and Translational Science
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Online Access:https://www.cambridge.org/core/product/identifier/S2059866124006708/type/journal_article
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author Tara P. McAlexander
Nora L. Lee
Gina S. Lovasi
Annemarie G. Hirsch
Melissa N. Poulsen
Brian Elbel
Lorna E. Thorpe
D. Leann Long
Leslie A. McClure
author_facet Tara P. McAlexander
Nora L. Lee
Gina S. Lovasi
Annemarie G. Hirsch
Melissa N. Poulsen
Brian Elbel
Lorna E. Thorpe
D. Leann Long
Leslie A. McClure
author_sort Tara P. McAlexander
collection DOAJ
description Multi-site and multi-organizational teams are increasingly common in epidemiologic research; however, there is a lack of standards or best practices for achieving success in collaborative research networks in epidemiology. We summarize our experiences and lessons learned from the Diabetes Location, Environmental Attributes, and Disparities (LEAD) Network, a collaborative agreement between the Centers for Disease Control and Prevention and research teams at Drexel University, New York University, Johns Hopkins University and Geisinger, and the University of Alabama at Birmingham. We present a roadmap for success in collaborative epidemiologic research, with recommendations focused on the following areas to maximize efficiency and success in collaborative research agreements: 1) operational and administrative considerations; 2) data access and sharing of sensitive data; 3) aligning network research aims; 4) harmonization of methods and measures; and 5) dissemination of findings. Future collaborations can be informed by our experiences and ultimately dedicate more resources to achieving scientific aims and efficiently disseminating scientific work products.
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institution Kabale University
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publishDate 2025-01-01
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series Journal of Clinical and Translational Science
spelling doaj-art-bfa611d4f7264aa596b2a578c9746fb62025-01-16T21:46:53ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2024.670Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD NetworkTara P. McAlexander0https://orcid.org/0000-0002-1343-3177Nora L. Lee1Gina S. Lovasi2Annemarie G. Hirsch3Melissa N. Poulsen4Brian Elbel5Lorna E. Thorpe6D. Leann Long7Leslie A. McClure8Department of Epidemiology and Biostatistics, Drexel University Dornsife School of Public Health, Philadelphia, PA, USADepartment of Epidemiology and Biostatistics, Drexel University Dornsife School of Public Health, Philadelphia, PA, USADepartment of Epidemiology and Biostatistics, Drexel University Dornsife School of Public Health, Philadelphia, PA, USADepartment of Population Health Sciences, Geisinger, Danville, PA, USADepartment of Population Health Sciences, Geisinger, Danville, PA, USADepartment of Population Health, New York University Grossman School of Medicine, New York, NY, USADepartment of Population Health, New York University Grossman School of Medicine, New York, NY, USADepartment of Biostatistics and Data Science, Wake Forest University School of Medicine, Winston-Salem, NC, USA Department of Biostatistics, The University of Alabama at Birmingham School of Public Health, Birmingham, AL, USADepartment of Epidemiology and Biostatistics, Drexel University Dornsife School of Public Health, Philadelphia, PA, USA Saint Louis University School of Public Health, St Louis, MO, USAMulti-site and multi-organizational teams are increasingly common in epidemiologic research; however, there is a lack of standards or best practices for achieving success in collaborative research networks in epidemiology. We summarize our experiences and lessons learned from the Diabetes Location, Environmental Attributes, and Disparities (LEAD) Network, a collaborative agreement between the Centers for Disease Control and Prevention and research teams at Drexel University, New York University, Johns Hopkins University and Geisinger, and the University of Alabama at Birmingham. We present a roadmap for success in collaborative epidemiologic research, with recommendations focused on the following areas to maximize efficiency and success in collaborative research agreements: 1) operational and administrative considerations; 2) data access and sharing of sensitive data; 3) aligning network research aims; 4) harmonization of methods and measures; and 5) dissemination of findings. Future collaborations can be informed by our experiences and ultimately dedicate more resources to achieving scientific aims and efficiently disseminating scientific work products.https://www.cambridge.org/core/product/identifier/S2059866124006708/type/journal_articleCollaborative researchteam scienceepidemiologyharmonizationresearch design and methods
spellingShingle Tara P. McAlexander
Nora L. Lee
Gina S. Lovasi
Annemarie G. Hirsch
Melissa N. Poulsen
Brian Elbel
Lorna E. Thorpe
D. Leann Long
Leslie A. McClure
Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network
Journal of Clinical and Translational Science
Collaborative research
team science
epidemiology
harmonization
research design and methods
title Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network
title_full Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network
title_fullStr Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network
title_full_unstemmed Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network
title_short Considerations and recommendations for collaborative research networks in epidemiology: Lessons learned from the diabetes LEAD Network
title_sort considerations and recommendations for collaborative research networks in epidemiology lessons learned from the diabetes lead network
topic Collaborative research
team science
epidemiology
harmonization
research design and methods
url https://www.cambridge.org/core/product/identifier/S2059866124006708/type/journal_article
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