An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China
Objective For emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-11-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/14/11/e089213.full |
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| author | Hui Li Ping Zhang Yu Zhou Ranran Qiao Tengteng Ding |
| author_facet | Hui Li Ping Zhang Yu Zhou Ranran Qiao Tengteng Ding |
| author_sort | Hui Li |
| collection | DOAJ |
| description | Objective For emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on how emerging adults with inflammatory bowel disease cope with these uncertainties exist. This study aimed to investigate uncertainties associated with the future of emerging adults with inflammatory bowel disease and explore coping strategies.Design A qualitative semistructured interview study with a phenomenological approach. Face-to-face semistructured interviews were conducted, audio-recorded, transcribed verbatim and subsequently analysed using the Colaizzi seven-step analysis method.Setting A tertiary hospital in eastern China.Participants Participants (n=14) were emerging adults with inflammatory bowel disease recruited from a tertiary hospital in eastern China, using a purposeful sampling technique.Results Fourteen patients completed the interviews. Four themes were identified: uncertainties in educational and vocational planning, social and interpersonal relationships, mental and emotional health and disease management. Moreover, the participants emphasised the significance of timely patient education postdiagnosis and ensuring consistent medical guidance after discharge to minimise uncertainty and alleviate confusion. They also hoped to manage the disease through traditional Chinese medicine.Conclusions This study provides valuable insights into the various challenges encountered by emerging adults with inflammatory bowel disease and the factors that may impact their experiences. Additionally, it suggests the need for healthcare providers to devise suitable support and intervention strategies to guide and establish stable management of the patients’ uncertain futures.Trial registration number ChiCTR2300071289. |
| format | Article |
| id | doaj-art-bbcc20d4c1474ccfac3c6328085015d7 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2024-11-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-bbcc20d4c1474ccfac3c6328085015d72024-11-22T06:35:08ZengBMJ Publishing GroupBMJ Open2044-60552024-11-01141110.1136/bmjopen-2024-089213An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern ChinaHui Li0Ping Zhang1Yu Zhou2Ranran Qiao3Tengteng Ding4Department of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, ChinaDepartment of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, ChinaDepartment of Nursing, Jiangsu Province Hospital of Chinese Medicine, Affiliated Hospital of Nanjing University of Chinese Medicine, Nanjing, Jiangsu, ChinaSchool of Nursing, Nanjing University of Chinese Medicine, Nanjing, Jiangsu, ChinaSchool of Nursing, Nanjing University of Chinese Medicine, Nanjing, Jiangsu, ChinaObjective For emerging adults with inflammatory bowel disease, future uncertainty is a critical issue during this pivotal stage of life, study and career development, as they encounter many unknown challenges and opportunities. However, to the best of our knowledge, only a few qualitative studies on how emerging adults with inflammatory bowel disease cope with these uncertainties exist. This study aimed to investigate uncertainties associated with the future of emerging adults with inflammatory bowel disease and explore coping strategies.Design A qualitative semistructured interview study with a phenomenological approach. Face-to-face semistructured interviews were conducted, audio-recorded, transcribed verbatim and subsequently analysed using the Colaizzi seven-step analysis method.Setting A tertiary hospital in eastern China.Participants Participants (n=14) were emerging adults with inflammatory bowel disease recruited from a tertiary hospital in eastern China, using a purposeful sampling technique.Results Fourteen patients completed the interviews. Four themes were identified: uncertainties in educational and vocational planning, social and interpersonal relationships, mental and emotional health and disease management. Moreover, the participants emphasised the significance of timely patient education postdiagnosis and ensuring consistent medical guidance after discharge to minimise uncertainty and alleviate confusion. They also hoped to manage the disease through traditional Chinese medicine.Conclusions This study provides valuable insights into the various challenges encountered by emerging adults with inflammatory bowel disease and the factors that may impact their experiences. Additionally, it suggests the need for healthcare providers to devise suitable support and intervention strategies to guide and establish stable management of the patients’ uncertain futures.Trial registration number ChiCTR2300071289.https://bmjopen.bmj.com/content/14/11/e089213.full |
| spellingShingle | Hui Li Ping Zhang Yu Zhou Ranran Qiao Tengteng Ding An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China BMJ Open |
| title | An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China |
| title_full | An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China |
| title_fullStr | An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China |
| title_full_unstemmed | An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China |
| title_short | An uncertain future: perspectives of emerging adults with inflammatory bowel disease—a qualitative semistructured interview study in eastern China |
| title_sort | uncertain future perspectives of emerging adults with inflammatory bowel disease a qualitative semistructured interview study in eastern china |
| url | https://bmjopen.bmj.com/content/14/11/e089213.full |
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