Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder
ABSTRACT Objective: to analyze the implementation of care agreements developed in the CACTO program for mothers of children with Autism Spectrum Disorder. Method: exploratory, qualitative study, guided by Unitary Caring Science and the Implementation Science methodological framework, based on the...
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| Format: | Article |
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Universidade Federal do Rio Grande do Sul
2025-01-01
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| Series: | Revista Gaúcha de Enfermagem |
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| Online Access: | http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472024000200417&lng=en&tlng=en |
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| author | Paulo Roberto Lima Falcão do Vale Jovana Gonçalves dos Santos Rebecca de Azevedo e Silva San Medrado Silva Andrade Núbia Samara Caribé de Aragão Luana Tonin Rosely Cabral de Carvalho Evanilda Souza de Santana Carvalho |
| author_facet | Paulo Roberto Lima Falcão do Vale Jovana Gonçalves dos Santos Rebecca de Azevedo e Silva San Medrado Silva Andrade Núbia Samara Caribé de Aragão Luana Tonin Rosely Cabral de Carvalho Evanilda Souza de Santana Carvalho |
| author_sort | Paulo Roberto Lima Falcão do Vale |
| collection | DOAJ |
| description | ABSTRACT Objective: to analyze the implementation of care agreements developed in the CACTO program for mothers of children with Autism Spectrum Disorder. Method: exploratory, qualitative study, guided by Unitary Caring Science and the Implementation Science methodological framework, based on the Consolidated Conceptual Framework for Implementation Research. Conducted with 20 mothers of children with Autism Spectrum Disorder, between April 2023 and February 2024, during care meetings developed in a non-governmental organization. For analysis, deductive thematic content analysis was used. Results: the agreements were categorized into three dimensions of human existence: body-mind-soul. The health needs of mothers determined the implementation of the agreements, such as: difficulties in body acceptance, sedentary lifestyle, lack of awareness of their own potential, insufficient self-care, unresolved past conflicts, self-blame, family conflicts, signs and symptoms of overload and fragility in the relationship with God. The lack of time and oppressive relationships were barriers, while motivation and spirituality served as strengths for the mothers in applying the agreement device. Final considerations: in-depth dialogue and the leading role of the mothers were decisive in the implementation of the agreements. Professional caregivers play a fundamental role in epistemological development while triggering innovative care in the health field. |
| format | Article |
| id | doaj-art-b6441e56b7464236b25f9e8ae6229723 |
| institution | Kabale University |
| issn | 1983-1447 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Universidade Federal do Rio Grande do Sul |
| record_format | Article |
| series | Revista Gaúcha de Enfermagem |
| spelling | doaj-art-b6441e56b7464236b25f9e8ae62297232025-01-14T07:35:09ZengUniversidade Federal do Rio Grande do SulRevista Gaúcha de Enfermagem1983-14472025-01-0145spe110.1590/1983-1447.2024.20240123.enImplementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorderPaulo Roberto Lima Falcão do Valehttps://orcid.org/0000-0002-1158-5628Jovana Gonçalves dos Santoshttps://orcid.org/0009-0008-6497-0926Rebecca de Azevedo e Silvahttps://orcid.org/0009-0007-3307-7839San Medrado Silva Andradehttps://orcid.org/0009-0000-3971-9782Núbia Samara Caribé de Aragãohttps://orcid.org/0000-0002-2308-7474Luana Toninhttps://orcid.org/0000-0003-3168-5762Rosely Cabral de Carvalhohttps://orcid.org/0000-0002-1060-2780Evanilda Souza de Santana Carvalhohttps://orcid.org/0000-0003-4564-0768ABSTRACT Objective: to analyze the implementation of care agreements developed in the CACTO program for mothers of children with Autism Spectrum Disorder. Method: exploratory, qualitative study, guided by Unitary Caring Science and the Implementation Science methodological framework, based on the Consolidated Conceptual Framework for Implementation Research. Conducted with 20 mothers of children with Autism Spectrum Disorder, between April 2023 and February 2024, during care meetings developed in a non-governmental organization. For analysis, deductive thematic content analysis was used. Results: the agreements were categorized into three dimensions of human existence: body-mind-soul. The health needs of mothers determined the implementation of the agreements, such as: difficulties in body acceptance, sedentary lifestyle, lack of awareness of their own potential, insufficient self-care, unresolved past conflicts, self-blame, family conflicts, signs and symptoms of overload and fragility in the relationship with God. The lack of time and oppressive relationships were barriers, while motivation and spirituality served as strengths for the mothers in applying the agreement device. Final considerations: in-depth dialogue and the leading role of the mothers were decisive in the implementation of the agreements. Professional caregivers play a fundamental role in epistemological development while triggering innovative care in the health field.http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472024000200417&lng=en&tlng=enAutism Spectrum DisorderCaregiversDisabled ChildrenMaternal-Child Health ServicesMother-Child RelationsNursing Theory. |
| spellingShingle | Paulo Roberto Lima Falcão do Vale Jovana Gonçalves dos Santos Rebecca de Azevedo e Silva San Medrado Silva Andrade Núbia Samara Caribé de Aragão Luana Tonin Rosely Cabral de Carvalho Evanilda Souza de Santana Carvalho Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder Revista Gaúcha de Enfermagem Autism Spectrum Disorder Caregivers Disabled Children Maternal-Child Health Services Mother-Child Relations Nursing Theory. |
| title | Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder |
| title_full | Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder |
| title_fullStr | Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder |
| title_full_unstemmed | Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder |
| title_short | Implementation of the care agreements of the CACTO program for mothers of children with autism spectrum disorder |
| title_sort | implementation of the care agreements of the cacto program for mothers of children with autism spectrum disorder |
| topic | Autism Spectrum Disorder Caregivers Disabled Children Maternal-Child Health Services Mother-Child Relations Nursing Theory. |
| url | http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472024000200417&lng=en&tlng=en |
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