Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation
Objective Developing and evaluating effective transition interventions for young people (16–25 years) with inflammatory bowel disease (IBD) is a high priority. While transition clinics (TCs) have been recommended, little is known about their operating structures and outcomes. This study aimed to gai...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2020-01-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/10/1/e033535.full |
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| author | Johanna C Escher Jane N T Sattoe Mariëlle A C Peeters Jannie Haitsma AnneLoes van Staa Victorien M Wolters |
| author_facet | Johanna C Escher Jane N T Sattoe Mariëlle A C Peeters Jannie Haitsma AnneLoes van Staa Victorien M Wolters |
| author_sort | Johanna C Escher |
| collection | DOAJ |
| description | Objective Developing and evaluating effective transition interventions for young people (16–25 years) with inflammatory bowel disease (IBD) is a high priority. While transition clinics (TCs) have been recommended, little is known about their operating structures and outcomes. This study aimed to gain insight into the value of a TC compared with direct handover care.Design Controlled mixed-methods evaluation of process outcomes, clinical outcomes and patient-reported outcomes.Setting Two outpatient IBD clinics in the Netherlands.Participants Data collection included: semistructured interviews with professionals (n=8), observations during consultations with young people (5×4 hours), medical chart reviews of patients transferred 2 to 4 years prior to data collection (n=56 in TC group; n=54 in control group) and patient questionnaires (n=14 in TC group; n=19 in control group).Outcomes Data were collected on service structures and daily routines of the TC, experienced barriers, facilitators and benefits, healthcare use, clinical outcomes, self-management outcomes and experiences and satisfaction of young people with IBD.Results At the TC, multidisciplinary team meetings and alignment of care between paediatric and adult care providers were standard practice. Non-medical topics received more attention during consultations with young people at the TC. Barriers experienced by professionals were time restrictions, planning difficulties, limited involvement of adult care providers and insufficient financial coverage. Facilitators experienced were high professional motivation and a high case load. Over the year before transfer, young people at the TC had more planned consultations (p=0.015, Cohen’s d=0.47). They showed a positive trend in better transfer experiences and more satisfaction. Those in direct handover care more often experienced a relapse before transfer (p=0.003) and had more missed consultations (p=0.034, Cohen’s d=−0.43) after transfer.Conclusion A TC offer opportunities to improve transitional care, but organisational and financial barriers need to be addressed before guidelines and consensus statements in healthcare policy and daily practice can be effectively implemented. |
| format | Article |
| id | doaj-art-b5f02cf4970b4b3dab3afea54a35ca5a |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-01-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-b5f02cf4970b4b3dab3afea54a35ca5a2024-12-06T00:00:10ZengBMJ Publishing GroupBMJ Open2044-60552020-01-0110110.1136/bmjopen-2019-033535Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluationJohanna C Escher0Jane N T Sattoe1Mariëlle A C Peeters2Jannie Haitsma3AnneLoes van Staa4Victorien M Wolters54 Department of Pediatric Gastroenterology, Erasmus Medical Centre - Sophia Children`s Hospital, Rotterdam, The Netherlands1 Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands1 Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands1 Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The NetherlandsErasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands3 Department of Pediatric Gastroenterology, University Medical Center Utrecht, Utrecht, The NetherlandsObjective Developing and evaluating effective transition interventions for young people (16–25 years) with inflammatory bowel disease (IBD) is a high priority. While transition clinics (TCs) have been recommended, little is known about their operating structures and outcomes. This study aimed to gain insight into the value of a TC compared with direct handover care.Design Controlled mixed-methods evaluation of process outcomes, clinical outcomes and patient-reported outcomes.Setting Two outpatient IBD clinics in the Netherlands.Participants Data collection included: semistructured interviews with professionals (n=8), observations during consultations with young people (5×4 hours), medical chart reviews of patients transferred 2 to 4 years prior to data collection (n=56 in TC group; n=54 in control group) and patient questionnaires (n=14 in TC group; n=19 in control group).Outcomes Data were collected on service structures and daily routines of the TC, experienced barriers, facilitators and benefits, healthcare use, clinical outcomes, self-management outcomes and experiences and satisfaction of young people with IBD.Results At the TC, multidisciplinary team meetings and alignment of care between paediatric and adult care providers were standard practice. Non-medical topics received more attention during consultations with young people at the TC. Barriers experienced by professionals were time restrictions, planning difficulties, limited involvement of adult care providers and insufficient financial coverage. Facilitators experienced were high professional motivation and a high case load. Over the year before transfer, young people at the TC had more planned consultations (p=0.015, Cohen’s d=0.47). They showed a positive trend in better transfer experiences and more satisfaction. Those in direct handover care more often experienced a relapse before transfer (p=0.003) and had more missed consultations (p=0.034, Cohen’s d=−0.43) after transfer.Conclusion A TC offer opportunities to improve transitional care, but organisational and financial barriers need to be addressed before guidelines and consensus statements in healthcare policy and daily practice can be effectively implemented.https://bmjopen.bmj.com/content/10/1/e033535.full |
| spellingShingle | Johanna C Escher Jane N T Sattoe Mariëlle A C Peeters Jannie Haitsma AnneLoes van Staa Victorien M Wolters Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation BMJ Open |
| title | Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation |
| title_full | Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation |
| title_fullStr | Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation |
| title_full_unstemmed | Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation |
| title_short | Value of an outpatient transition clinic for young people with inflammatory bowel disease: a mixed-methods evaluation |
| title_sort | value of an outpatient transition clinic for young people with inflammatory bowel disease a mixed methods evaluation |
| url | https://bmjopen.bmj.com/content/10/1/e033535.full |
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