Patient and public involvement in neonatal research – experiences and insights from parents and researchers
Abstract Background Involving parents in decisions about the care of their infant is common practice in most neonatal intensive care units. However, involvement is less common in neonatal research and a gap appears to exist in understanding the process of patient and public involvement. The aim of t...
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| Format: | Article |
| Language: | English |
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BMC
2025-01-01
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| Series: | Research Involvement and Engagement |
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| Online Access: | https://doi.org/10.1186/s40900-024-00670-3 |
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| author | Michella Bjerregaard Ingrid Poulsen Emma Carlsen Antonio Esparza Joanna Smith Anne Brødsgaard |
| author_facet | Michella Bjerregaard Ingrid Poulsen Emma Carlsen Antonio Esparza Joanna Smith Anne Brødsgaard |
| author_sort | Michella Bjerregaard |
| collection | DOAJ |
| description | Abstract Background Involving parents in decisions about the care of their infant is common practice in most neonatal intensive care units. However, involvement is less common in neonatal research and a gap appears to exist in understanding the process of patient and public involvement. The aim of this study was to explore parents and researchers’ experiences of patient and public involvement in a neonatal research project. Methods A qualitative design was employed, consisting of two focus group interviews, one dyadic interview, and four individual interviews with parents and researchers. The interviews followed a semi-structured guide specific to both parents and researchers. Data were analysed using content analysis as described by Graneheim and Lundman. Results A total of nine parents and four researchers participated in the study. Seven themes were consolidated into three core concepts: Embracing the ethos and pathos of patient and public involvement, Finding the path to maximise meaningful involvement, and Becoming skilled in engaging patients and the public in research. The core concepts highlighted both similarities and differences, as well as challenges and facilitators, of the experiences of the patient and public involvement process. Conclusion Patient and public involvement in research was a mutually beneficial process, facilitating learning and reflective opportunities for parents and researchers. However, there were challenges that emphasised the need for rapport building between parents and researchers, valuing everyone’s unique perspective and expertise, with clear communication and well-defined roles and goals. These insights offer a contribution for future patient and public involvement in health research. |
| format | Article |
| id | doaj-art-b06869ac18f24717876890c9ac92b5dd |
| institution | Kabale University |
| issn | 2056-7529 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj-art-b06869ac18f24717876890c9ac92b5dd2025-01-12T12:44:01ZengBMCResearch Involvement and Engagement2056-75292025-01-0111111210.1186/s40900-024-00670-3Patient and public involvement in neonatal research – experiences and insights from parents and researchersMichella Bjerregaard0Ingrid Poulsen1Emma Carlsen2Antonio Esparza3Joanna Smith4Anne Brødsgaard5Department of Public Health, Faculty of Health, Aarhus UniversityDepartment of Public Health, Faculty of Health, Aarhus UniversityDepartment of Paediatrics and Adolescent Medicine, Copenhagen University Hospital Amager HvidovreTecnológico de Monterrey, University of MonterreySchool of Health & Social Care, College of Health & Wellbeing & Life Sciences, Sheffield Hallam University, Sheffield Children’s Hospital Foundation TrustDepartment of Public Health, Faculty of Health, Aarhus UniversityAbstract Background Involving parents in decisions about the care of their infant is common practice in most neonatal intensive care units. However, involvement is less common in neonatal research and a gap appears to exist in understanding the process of patient and public involvement. The aim of this study was to explore parents and researchers’ experiences of patient and public involvement in a neonatal research project. Methods A qualitative design was employed, consisting of two focus group interviews, one dyadic interview, and four individual interviews with parents and researchers. The interviews followed a semi-structured guide specific to both parents and researchers. Data were analysed using content analysis as described by Graneheim and Lundman. Results A total of nine parents and four researchers participated in the study. Seven themes were consolidated into three core concepts: Embracing the ethos and pathos of patient and public involvement, Finding the path to maximise meaningful involvement, and Becoming skilled in engaging patients and the public in research. The core concepts highlighted both similarities and differences, as well as challenges and facilitators, of the experiences of the patient and public involvement process. Conclusion Patient and public involvement in research was a mutually beneficial process, facilitating learning and reflective opportunities for parents and researchers. However, there were challenges that emphasised the need for rapport building between parents and researchers, valuing everyone’s unique perspective and expertise, with clear communication and well-defined roles and goals. These insights offer a contribution for future patient and public involvement in health research.https://doi.org/10.1186/s40900-024-00670-3Patient and public involvementPPIFamily-centered careNeonatal intensive care unitNICUQualitative research |
| spellingShingle | Michella Bjerregaard Ingrid Poulsen Emma Carlsen Antonio Esparza Joanna Smith Anne Brødsgaard Patient and public involvement in neonatal research – experiences and insights from parents and researchers Research Involvement and Engagement Patient and public involvement PPI Family-centered care Neonatal intensive care unit NICU Qualitative research |
| title | Patient and public involvement in neonatal research – experiences and insights from parents and researchers |
| title_full | Patient and public involvement in neonatal research – experiences and insights from parents and researchers |
| title_fullStr | Patient and public involvement in neonatal research – experiences and insights from parents and researchers |
| title_full_unstemmed | Patient and public involvement in neonatal research – experiences and insights from parents and researchers |
| title_short | Patient and public involvement in neonatal research – experiences and insights from parents and researchers |
| title_sort | patient and public involvement in neonatal research experiences and insights from parents and researchers |
| topic | Patient and public involvement PPI Family-centered care Neonatal intensive care unit NICU Qualitative research |
| url | https://doi.org/10.1186/s40900-024-00670-3 |
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