Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved]
Aim To determine the influencing factors of health-related quality-of-life (HRQoL) perceived by North-African children/adolescents with type-1 diabetes-mellitus (T1DM) and their parents. Methods It was a cross sectional study conducted in Tunisia. A total of 116 patients ( ie ; 43 children and 73 ad...
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F1000 Research Ltd
2025-01-01
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| author | Jihene Bouguila Hichem Ben Said Lamia Boughamoura Helmi Ben Saad Khansa Derbel Raoudha Kebeili Imen Ben Abdesselem |
| author_facet | Jihene Bouguila Hichem Ben Said Lamia Boughamoura Helmi Ben Saad Khansa Derbel Raoudha Kebeili Imen Ben Abdesselem |
| author_sort | Jihene Bouguila |
| collection | DOAJ |
| description | Aim To determine the influencing factors of health-related quality-of-life (HRQoL) perceived by North-African children/adolescents with type-1 diabetes-mellitus (T1DM) and their parents. Methods It was a cross sectional study conducted in Tunisia. A total of 116 patients ( ie ; 43 children and 73 adolescents) and their parents were included. The Arabic validated version of the Pediatric Generic Core Quality-of-Life Inventory 4.0-Scale (PedsQL4.0) was used to evaluate the HRQoL of children/adolescents as perceived by patients and parents. The dependent data were the patients’ self-report and the parents’ proxy-report of the PedsQL4.0 total scores, and the independent data were the patients and parents characteristics. Results Patients’ PedsQL4.0 total score was influenced significantly by siblings in the family > 2; lipodystrophy, and glycosylated hemoglobin (HbA1C). The combination of these factors explained 34.84% of the PedsQL4.0 total score variability. Parents’ PedsQL4.0 total score was influenced significantly by lipodystrophy, siblings; body mass index (BMI), hypoglycemia episodes, and HbA1C. The combination of these factors explained 56.92% of the PedsQL4.0 total score variability. Conclusion T1DM patients self-reported HRQoL was influenced by siblings in the family > 2; lipodystrophy, and HbA1C. The parents’ proxy-report HRQoL was influenced by lipodystrophy, siblings, BMI, hypoglycemia episodes, and HbA1C. |
| format | Article |
| id | doaj-art-abab771b0f324de3a7ed72c9ee7fa957 |
| institution | Kabale University |
| issn | 2046-1402 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | F1000 Research Ltd |
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| series | F1000Research |
| spelling | doaj-art-abab771b0f324de3a7ed72c9ee7fa9572025-01-18T01:00:01ZengF1000 Research LtdF1000Research2046-14022025-01-0113176673Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved]Jihene Bouguila0Hichem Ben Said1Lamia Boughamoura2Helmi Ben Saad3https://orcid.org/0000-0002-7477-2965Khansa Derbel4Raoudha Kebeili5Imen Ben Abdesselem6https://orcid.org/0000-0002-8464-0720Research Laboratory "Heart failure" (LR12SP09), University of Sousse, Sousse, 4002, TunisiaPediatrics, Hospital Farhat HACHED, Sousse, 4002, TunisiaFaculty of Medicine of Sousse, University of Sousse, Sousse, 4002, TunisiaResearch Laboratory "Heart failure" (LR12SP09), University of Sousse, Sousse, 4002, TunisiaResearch Laboratory "Heart failure" (LR12SP09), University of Sousse, Sousse, 4002, TunisiaFaculty of Medicine of Sousse, University of Sousse, Sousse, 4002, TunisiaResearch Laboratory "Heart failure" (LR12SP09), University of Sousse, Sousse, 4002, TunisiaAim To determine the influencing factors of health-related quality-of-life (HRQoL) perceived by North-African children/adolescents with type-1 diabetes-mellitus (T1DM) and their parents. Methods It was a cross sectional study conducted in Tunisia. A total of 116 patients ( ie ; 43 children and 73 adolescents) and their parents were included. The Arabic validated version of the Pediatric Generic Core Quality-of-Life Inventory 4.0-Scale (PedsQL4.0) was used to evaluate the HRQoL of children/adolescents as perceived by patients and parents. The dependent data were the patients’ self-report and the parents’ proxy-report of the PedsQL4.0 total scores, and the independent data were the patients and parents characteristics. Results Patients’ PedsQL4.0 total score was influenced significantly by siblings in the family > 2; lipodystrophy, and glycosylated hemoglobin (HbA1C). The combination of these factors explained 34.84% of the PedsQL4.0 total score variability. Parents’ PedsQL4.0 total score was influenced significantly by lipodystrophy, siblings; body mass index (BMI), hypoglycemia episodes, and HbA1C. The combination of these factors explained 56.92% of the PedsQL4.0 total score variability. Conclusion T1DM patients self-reported HRQoL was influenced by siblings in the family > 2; lipodystrophy, and HbA1C. The parents’ proxy-report HRQoL was influenced by lipodystrophy, siblings, BMI, hypoglycemia episodes, and HbA1C.https://f1000research.com/articles/13-429/v2Adolescent Child Diabetes mellitus type 1 Parents HRQoL North Africaeng |
| spellingShingle | Jihene Bouguila Hichem Ben Said Lamia Boughamoura Helmi Ben Saad Khansa Derbel Raoudha Kebeili Imen Ben Abdesselem Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved] F1000Research Adolescent Child Diabetes mellitus type 1 Parents HRQoL North Africa eng |
| title | Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved] |
| title_full | Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved] |
| title_fullStr | Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved] |
| title_full_unstemmed | Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved] |
| title_short | Influencing factors of health-related quality-of-life perceived by both children/adolescents patients with type-1 diabetes mellitus and their parents: A North-African study [version 2; peer review: 2 approved] |
| title_sort | influencing factors of health related quality of life perceived by both children adolescents patients with type 1 diabetes mellitus and their parents a north african study version 2 peer review 2 approved |
| topic | Adolescent Child Diabetes mellitus type 1 Parents HRQoL North Africa eng |
| url | https://f1000research.com/articles/13-429/v2 |
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