Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers
Background Dementia is a debilitating disease that can lead to major changes in a patient’s behaviour and function. It is important to educate both patients with dementia and their non-professional caregivers about the disease. Yet, currently available sources do not seem to be effective for patient...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2019-12-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/9/12/e028324.full |
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| _version_ | 1846148261899927552 |
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| author | Shu Ting Au Aijia Soong Bhone Myint Kyaw Lorainne Tudor Car |
| author_facet | Shu Ting Au Aijia Soong Bhone Myint Kyaw Lorainne Tudor Car |
| author_sort | Shu Ting Au |
| collection | DOAJ |
| description | Background Dementia is a debilitating disease that can lead to major changes in a patient’s behaviour and function. It is important to educate both patients with dementia and their non-professional caregivers about the disease. Yet, currently available sources do not seem to be effective for patients and caregivers, who report a need for more information and guidance. A systematic identification of the patients’ and caregivers’ needs for information and information-seeking behaviour is needed to create information resources that are relevant and beneficial to the target population.Objectives This is a protocol for a scoping review aimed at gathering knowledge on the information needs and information-seeking behaviour of patients with dementia and their non-professional caregivers. Our aim was also to provide recommendations for development of future dementia information resources.Methods The study will commence in November 2018. Both quantitative and qualitative studies on the information needs of patients with dementia or caregivers will be examined using Arksey and O’Malley’s methodological framework for scoping studies. A comprehensive literature search will be conducted in electronic databases and grey literature sources. We will also screen reference lists of included studies and related systematic reviews for additional eligible studies. Two authors will perform screening of citations for eligibility and independently extract data from the included studies in parallel. Any discrepancies will be resolved through discussion. The findings will be presented through a narrative synthesis and reported in line with PreferredReporting Items for Systematic Reviews and Meta-Analyses reporting guidelines.Ethics and dissemination In this review, all included data will originate from published literature. Ethics approval is therefore not a requirement. We will present our findings at relevant conferences and will submit them for publication in peer-reviewed journals. |
| format | Article |
| id | doaj-art-a479a3774a754aeca83f93f6b1868b05 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2019-12-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-a479a3774a754aeca83f93f6b1868b052024-12-01T10:30:09ZengBMJ Publishing GroupBMJ Open2044-60552019-12-0191210.1136/bmjopen-2018-028324Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregiversShu Ting Au0Aijia Soong1Bhone Myint Kyaw2Lorainne Tudor Car31 Lee Kong Chian School of Medicine, Nanyang Technological University Singapore, Singapore2 Family Medicine and Primary Care, Lee Kong Chian School of Medicine, Nanyang Technological University Singapore, Singapore2 Family Medicine and Primary Care, Lee Kong Chian School of Medicine, Nanyang Technological University Singapore, SingaporeLee Kong Chian School of Medicine, Nanyang Technological University, SingaporeBackground Dementia is a debilitating disease that can lead to major changes in a patient’s behaviour and function. It is important to educate both patients with dementia and their non-professional caregivers about the disease. Yet, currently available sources do not seem to be effective for patients and caregivers, who report a need for more information and guidance. A systematic identification of the patients’ and caregivers’ needs for information and information-seeking behaviour is needed to create information resources that are relevant and beneficial to the target population.Objectives This is a protocol for a scoping review aimed at gathering knowledge on the information needs and information-seeking behaviour of patients with dementia and their non-professional caregivers. Our aim was also to provide recommendations for development of future dementia information resources.Methods The study will commence in November 2018. Both quantitative and qualitative studies on the information needs of patients with dementia or caregivers will be examined using Arksey and O’Malley’s methodological framework for scoping studies. A comprehensive literature search will be conducted in electronic databases and grey literature sources. We will also screen reference lists of included studies and related systematic reviews for additional eligible studies. Two authors will perform screening of citations for eligibility and independently extract data from the included studies in parallel. Any discrepancies will be resolved through discussion. The findings will be presented through a narrative synthesis and reported in line with PreferredReporting Items for Systematic Reviews and Meta-Analyses reporting guidelines.Ethics and dissemination In this review, all included data will originate from published literature. Ethics approval is therefore not a requirement. We will present our findings at relevant conferences and will submit them for publication in peer-reviewed journals.https://bmjopen.bmj.com/content/9/12/e028324.full |
| spellingShingle | Shu Ting Au Aijia Soong Bhone Myint Kyaw Lorainne Tudor Car Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers BMJ Open |
| title | Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers |
| title_full | Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers |
| title_fullStr | Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers |
| title_full_unstemmed | Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers |
| title_short | Protocol for a scoping review on information needs and information-seeking behaviour of people with dementia and their non-professional caregivers |
| title_sort | protocol for a scoping review on information needs and information seeking behaviour of people with dementia and their non professional caregivers |
| url | https://bmjopen.bmj.com/content/9/12/e028324.full |
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