Patient journey in cystinosis: focus on non-adherence and disease management

Patient journey in cystinosis: focus on non-adherence and disease management

Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and suggests potential actions for improvement. Methods:...

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Main Authors: Gema Ariceta, Simón Lalanza, Catalina Peña, Marta Martínez Montero, Carlos Bezos Daleske, Laura Acuña Álvarez, Elisa Giner
Format: Article
Language:English
Published: BioExcel Publishing Ltd 2024-11-01
Series:Drugs in Context
Subjects:
adherence
cysteamine
cystinosis
patient journey
prem
qualitative research
Online Access:https://www.drugsincontext.com/patient-journey-in-cystinosis-focus-on-non-adherence-and-disease-management/
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