Patient journey in cystinosis: focus on non-adherence and disease management
Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and suggests potential actions for improvement. Methods:...
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| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BioExcel Publishing Ltd
2024-11-01
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| Series: | Drugs in Context |
| Subjects: | |
| Online Access: | https://www.drugsincontext.com/patient-journey-in-cystinosis-focus-on-non-adherence-and-disease-management/ |
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