Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16)
Purpose: An important outcome measure of patient care is the impact on the patient’s health-related quality of life (HRQoL). Current ear-specific HRQoL instruments are designed for one diagnosis and emphasize different subdivisions such as symptoms, hearing problems, psychosocial impact, and the nee...
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| Language: | English |
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Tsinghua University Press
2021-07-01
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| Series: | Journal of Otology |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S1672293021000039 |
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| author | Juha T. Laakso Juha Silvola Timo Hirvonen Samuli Suutarla Ilkka Kivekäs Riitta Saarinen Lotta Haavisto Jaakko Laitakari Antti A. Aarnisalo Aarno Dietz Jussi Jero Maija Hytönen Saku T. Sinkkonen |
| author_facet | Juha T. Laakso Juha Silvola Timo Hirvonen Samuli Suutarla Ilkka Kivekäs Riitta Saarinen Lotta Haavisto Jaakko Laitakari Antti A. Aarnisalo Aarno Dietz Jussi Jero Maija Hytönen Saku T. Sinkkonen |
| author_sort | Juha T. Laakso |
| collection | DOAJ |
| description | Purpose: An important outcome measure of patient care is the impact on the patient’s health-related quality of life (HRQoL). Current ear-specific HRQoL instruments are designed for one diagnosis and emphasize different subdivisions such as symptoms, hearing problems, psychosocial impact, and the need for care. The optimal length of the recall period has not been studied. For these reasons, a new survey is needed that would cover most chronic ear diseases. Methods: A preliminary 24-item survey (EOS-24) was created. Untreated adult patients (included n = 186) with one of seven different chronic otologic conditions from all university hospitals in Finland were recruited to respond to EOS-24 and the 15D general HRQoL instrument. The recruiting otologists evaluated the severity of the disease and the disability caused by it. A control group was recruited. Based on the patients’ responses in different diagnosis groups, the items were reduced according to pre-defined criteria. The resulting survey was validated using a thorough statistical analysis. Results: The relevance and necessity of the original 24 items were thoroughly investigated, leading to the exclusion of 8 items and the modification of 1. The remaining 16 items were well-balanced between subdivisions and were useful in all seven diagnosis groups, thus constituting the final instrument, EOS-16. The most suitable recall period was three months. Conclusions: EOS-16 has been created according to the HRQoL survey guidelines with a versatile nationwide patient population. The survey has been validated and can be used for a wide range of chronic ear diseases as a HRQoL instrument. |
| format | Article |
| id | doaj-art-a1f177a4ceb34c04b7edc9a301b9eae1 |
| institution | Kabale University |
| issn | 1672-2930 |
| language | English |
| publishDate | 2021-07-01 |
| publisher | Tsinghua University Press |
| record_format | Article |
| series | Journal of Otology |
| spelling | doaj-art-a1f177a4ceb34c04b7edc9a301b9eae12025-08-20T03:49:03ZengTsinghua University PressJournal of Otology1672-29302021-07-0116315015710.1016/j.joto.2021.01.003Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16)Juha T. Laakso0Juha Silvola1Timo Hirvonen2Samuli Suutarla3Ilkka Kivekäs4Riitta Saarinen5Lotta Haavisto6Jaakko Laitakari7Antti A. Aarnisalo8Aarno Dietz9Jussi Jero10Maija Hytönen11Saku T. Sinkkonen12Department of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, Finland; Corresponding author. Department of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital, P.O. Box 220, FI-00029, HUH, Helsinki, Finland.Department of Ear, Nose, and Throat – Division of Surgery, Akershus University Hospital, Lørenskog, NorwayDepartment of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, Finland; Department of Otorhinolaryngology, Kymenlaakso Central Hospital, Kotka, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Tampere University Hospital and Tampere University, Tampere, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Turku University Hospital and University of Turku, Turku, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Oulu University Hospital and PEDEGO Research Unit, University of Oulu and Medical Research Center Oulu, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Kuopio University Hospital and University of Kuopio, Kuopio, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Turku University Hospital and University of Turku, Turku, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, FinlandDepartment of Otorhinolaryngology – Head and Neck Surgery, Head and Neck Center, Helsinki University Hospital and University of Helsinki, Helsinki, FinlandPurpose: An important outcome measure of patient care is the impact on the patient’s health-related quality of life (HRQoL). Current ear-specific HRQoL instruments are designed for one diagnosis and emphasize different subdivisions such as symptoms, hearing problems, psychosocial impact, and the need for care. The optimal length of the recall period has not been studied. For these reasons, a new survey is needed that would cover most chronic ear diseases. Methods: A preliminary 24-item survey (EOS-24) was created. Untreated adult patients (included n = 186) with one of seven different chronic otologic conditions from all university hospitals in Finland were recruited to respond to EOS-24 and the 15D general HRQoL instrument. The recruiting otologists evaluated the severity of the disease and the disability caused by it. A control group was recruited. Based on the patients’ responses in different diagnosis groups, the items were reduced according to pre-defined criteria. The resulting survey was validated using a thorough statistical analysis. Results: The relevance and necessity of the original 24 items were thoroughly investigated, leading to the exclusion of 8 items and the modification of 1. The remaining 16 items were well-balanced between subdivisions and were useful in all seven diagnosis groups, thus constituting the final instrument, EOS-16. The most suitable recall period was three months. Conclusions: EOS-16 has been created according to the HRQoL survey guidelines with a versatile nationwide patient population. The survey has been validated and can be used for a wide range of chronic ear diseases as a HRQoL instrument.http://www.sciencedirect.com/science/article/pii/S1672293021000039OtologyChronic ear diseasesHRQoLHealth-related quality of lifePROM |
| spellingShingle | Juha T. Laakso Juha Silvola Timo Hirvonen Samuli Suutarla Ilkka Kivekäs Riitta Saarinen Lotta Haavisto Jaakko Laitakari Antti A. Aarnisalo Aarno Dietz Jussi Jero Maija Hytönen Saku T. Sinkkonen Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16) Journal of Otology Otology Chronic ear diseases HRQoL Health-related quality of life PROM |
| title | Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16) |
| title_full | Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16) |
| title_fullStr | Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16) |
| title_full_unstemmed | Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16) |
| title_short | Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16) |
| title_sort | development of otology specific outcome measure ear outcome survey 16 eos 16 |
| topic | Otology Chronic ear diseases HRQoL Health-related quality of life PROM |
| url | http://www.sciencedirect.com/science/article/pii/S1672293021000039 |
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