Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV)
Introduction Transgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of H...
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BMJ Publishing Group
2021-12-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/11/12/e052691.full |
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| author | Gwenaëlle Maradan Marion Mora Michel Bourrelly Bruno Spire Yazdan Yazdanpanah Julie Pannetier Giovanna Rincon Florence Michard David Michels Anaenza Freire Maresca Elisabeth Rouveix Diane Leriche Tristan Alain |
| author_facet | Gwenaëlle Maradan Marion Mora Michel Bourrelly Bruno Spire Yazdan Yazdanpanah Julie Pannetier Giovanna Rincon Florence Michard David Michels Anaenza Freire Maresca Elisabeth Rouveix Diane Leriche Tristan Alain |
| author_sort | Gwenaëlle Maradan |
| collection | DOAJ |
| description | Introduction Transgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HIV infection, especially for HIV-positive transgender people (TRHIV). The main objective of the community-based research study ANRS Trans&HIV is to identify personal and social situations of vulnerability in TRHIV, the obstacles they encounter in terms of access to and retention in medical care, and their gender affirmation and HIV care needs.Methods and analysis ANRS Trans&HIV is a national, comprehensive, cross-sectional survey of all TRHIV currently being followed in HIV care units in France. TRHIV women are exclusively included in the quantitative component, and TRHIV men in the qualitative component. Data are collected by community-based interviewers and will be analysed to explore patient care pathways and living conditions in the TRHIV population with regard to gender affirmation and HIV. Data collection began in October 2020 and should be completed in December 2021. The statistical analyses techniques used will be adapted to each of the study’s objectives and to the type of data collected (cross-sectional (questionnaires) and retrospective (biographical trajectory)). The study’s results will provide a greater understanding of TRHIV health needs in order to suggest possible national recommendations for comprehensive HIV and gender affirmation medical care.Ethics and dissemination ANRS Trans&HIV was approved by Inserm’s Ethical Evaluation Committee (no 20-694 on 12 May 2020) and is registered with the National Commission on Informatics and Liberty under number 2518030720. Potential participants are informed about the study through an information note provided by their attending HIV physician. All results published in peer-reviewed journals will be disseminated to the HIV transgender community, institutional stakeholders and healthcare providers.Trial registration number NCT04849767. |
| format | Article |
| id | doaj-art-9f863e38fd0a47aab7c409460ddcd649 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2021-12-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-9f863e38fd0a47aab7c409460ddcd6492024-12-10T10:20:13ZengBMJ Publishing GroupBMJ Open2044-60552021-12-01111210.1136/bmjopen-2021-052691Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV)Gwenaëlle Maradan0Marion Mora1Michel Bourrelly2Bruno Spire3Yazdan Yazdanpanah4Julie Pannetier5Giovanna Rincon6Florence Michard7David Michels8Anaenza Freire Maresca9Elisabeth Rouveix10Diane Leriche11Tristan Alain122 ORS PACA, Observatoire régional de la santé Provence-Alpes-Côte d’Azur, Marseille, FranceAix Marseille Univ, Inserm, IRD, ISSPAM, SESSTIM UMR 1252, Marseille, Provence-Alpes-Côte dAzur, France1 Aix Marseille Univ, INSERM, IRD, SESSTIM, Sciences Economiques & Sociales de la Santé & Traitement de l’Information Médicale, Marseille, France2 ORS PACA, Observatoire régional de la santé Provence-Alpes-Côte d’Azur, Marseille, FranceInserm, IAME, UMR 1137, université Paris Diderot, Hopital Bichat - Claude-Bernard, Paris, Île-de-France, FranceParis Descartes University, IRD, ERL Inserm SAGESUD, CEPED, Paris, Île-de-France, FranceACCEPTESS-T, Paris, FranceInserm, IAME, UMR 1137, université Paris Diderot, Hopital Bichat - Claude-Bernard, Paris, Île-de-France, FranceAIDES, Pantin, FranceService de médecine interne, UFR Paris Île-de-France Ouest, Hopital Ambroise-Pare, Boulogne-Billancourt, Île-de-France, FranceService de médecine interne, UFR Paris Île-de-France Ouest, Hopital Ambroise-Pare, Boulogne-Billancourt, Île-de-France, FranceCollectif Interassociatif coordination, Groupe Interassociatif Traitement & Recherche Thérapeutique (TrT5), Paris, FranceAIDES, Pantin, Île-de-France, FranceIntroduction Transgender identity is poorly accepted in France, and data on living conditions and the daily difficulties transgender people encounter are scarce. This lack of data reinforces their invisibility in social life, contributes to their stigmatisation and probably increases the burden of HIV infection, especially for HIV-positive transgender people (TRHIV). The main objective of the community-based research study ANRS Trans&HIV is to identify personal and social situations of vulnerability in TRHIV, the obstacles they encounter in terms of access to and retention in medical care, and their gender affirmation and HIV care needs.Methods and analysis ANRS Trans&HIV is a national, comprehensive, cross-sectional survey of all TRHIV currently being followed in HIV care units in France. TRHIV women are exclusively included in the quantitative component, and TRHIV men in the qualitative component. Data are collected by community-based interviewers and will be analysed to explore patient care pathways and living conditions in the TRHIV population with regard to gender affirmation and HIV. Data collection began in October 2020 and should be completed in December 2021. The statistical analyses techniques used will be adapted to each of the study’s objectives and to the type of data collected (cross-sectional (questionnaires) and retrospective (biographical trajectory)). The study’s results will provide a greater understanding of TRHIV health needs in order to suggest possible national recommendations for comprehensive HIV and gender affirmation medical care.Ethics and dissemination ANRS Trans&HIV was approved by Inserm’s Ethical Evaluation Committee (no 20-694 on 12 May 2020) and is registered with the National Commission on Informatics and Liberty under number 2518030720. Potential participants are informed about the study through an information note provided by their attending HIV physician. All results published in peer-reviewed journals will be disseminated to the HIV transgender community, institutional stakeholders and healthcare providers.Trial registration number NCT04849767.https://bmjopen.bmj.com/content/11/12/e052691.full |
| spellingShingle | Gwenaëlle Maradan Marion Mora Michel Bourrelly Bruno Spire Yazdan Yazdanpanah Julie Pannetier Giovanna Rincon Florence Michard David Michels Anaenza Freire Maresca Elisabeth Rouveix Diane Leriche Tristan Alain Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) BMJ Open |
| title | Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) |
| title_full | Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) |
| title_fullStr | Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) |
| title_full_unstemmed | Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) |
| title_short | Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV) |
| title_sort | living conditions hiv and gender affirmation care pathways of transgender people living with hiv in france a nationwide comprehensive cross sectional community based research protocol anrs trans hiv |
| url | https://bmjopen.bmj.com/content/11/12/e052691.full |
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