Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System
Community-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective...
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| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2024-12-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/23743735241305531 |
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| _version_ | 1846126002076385280 |
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| author | Ann Marie Martin PhD Jordan Huskins MD Angela Paxton BS Amira Nafiseh MD, MPH Mary R. Ciccarelli MD Brandon Keehn PhD Rebecca McNally Keehn PhD |
| author_facet | Ann Marie Martin PhD Jordan Huskins MD Angela Paxton BS Amira Nafiseh MD, MPH Mary R. Ciccarelli MD Brandon Keehn PhD Rebecca McNally Keehn PhD |
| author_sort | Ann Marie Martin PhD |
| collection | DOAJ |
| description | Community-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective was to use a mixed-methods approach to investigate caregiver satisfaction with their child's autism evaluation conducted across a statewide system of primary care autism diagnosis. Results indicated overall high satisfaction and no significant differences were found between satisfaction total scores nor caregiver stress and any child/family demographic variables. Satisfaction and stress were also not related to autism diagnostic outcome, clinician diagnostic certainty, or diagnostic accuracy. Qualitative suggestions for evaluation improvement include more thorough explanation of diagnosis and service recommendations. Overall, our findings indicate high caregiver satisfaction with multiple dimensions of community-based autism evaluation in the primary care setting, suggesting this may be a feasible and sustainable model that caregivers find acceptable. |
| format | Article |
| id | doaj-art-9f2821fd798b479b981ed99f198d2f8e |
| institution | Kabale University |
| issn | 2374-3743 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Patient Experience |
| spelling | doaj-art-9f2821fd798b479b981ed99f198d2f8e2024-12-13T08:03:23ZengSAGE PublishingJournal of Patient Experience2374-37432024-12-011110.1177/23743735241305531Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub SystemAnn Marie Martin PhD0Jordan Huskins MD1Angela Paxton BS2Amira Nafiseh MD, MPH3Mary R. Ciccarelli MD4Brandon Keehn PhD5Rebecca McNally Keehn PhD6 Department of Pediatrics, , Indianapolis, IN, USA Department of Pediatrics, , Indianapolis, IN, USA Department of Pediatrics, , Indianapolis, IN, USA Department of Pediatrics, , Indianapolis, IN, USA Department of Pediatrics, , Indianapolis, IN, USA Department of Psychological Sciences, , West Lafayette, IN, USA Department of Pediatrics, , Indianapolis, IN, USACommunity-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective was to use a mixed-methods approach to investigate caregiver satisfaction with their child's autism evaluation conducted across a statewide system of primary care autism diagnosis. Results indicated overall high satisfaction and no significant differences were found between satisfaction total scores nor caregiver stress and any child/family demographic variables. Satisfaction and stress were also not related to autism diagnostic outcome, clinician diagnostic certainty, or diagnostic accuracy. Qualitative suggestions for evaluation improvement include more thorough explanation of diagnosis and service recommendations. Overall, our findings indicate high caregiver satisfaction with multiple dimensions of community-based autism evaluation in the primary care setting, suggesting this may be a feasible and sustainable model that caregivers find acceptable.https://doi.org/10.1177/23743735241305531 |
| spellingShingle | Ann Marie Martin PhD Jordan Huskins MD Angela Paxton BS Amira Nafiseh MD, MPH Mary R. Ciccarelli MD Brandon Keehn PhD Rebecca McNally Keehn PhD Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System Journal of Patient Experience |
| title | Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System |
| title_full | Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System |
| title_fullStr | Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System |
| title_full_unstemmed | Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System |
| title_short | Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System |
| title_sort | mixed methods analysis of caregiver satisfaction with the early autism evaluation hub system |
| url | https://doi.org/10.1177/23743735241305531 |
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