Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada

This study aims to assess family doctors' perceived needs for improved patient follow-up post-acute treatment in oncology departments, specifically focusing on the Patient Oriented Discharge Summary (PODS) for individuals living with cancer. A cross-sectional quantitative survey targeted family...

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Main Authors: Christine Arsenault, Saskia Hazout, John Calogerinis, Françoise Poirier, Louise Normandin, Cécile Vialaron, Monica Iliescu Nelea, Marie-Pascale Pomey
Format: Article
Language:English
Published: The Beryl Institute 2024-08-01
Series:Patient Experience Journal
Subjects:
Online Access:https://pxjournal.org/journal/vol11/iss2/9
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author Christine Arsenault
Saskia Hazout
John Calogerinis
Françoise Poirier
Louise Normandin
Cécile Vialaron
Monica Iliescu Nelea
Marie-Pascale Pomey
author_facet Christine Arsenault
Saskia Hazout
John Calogerinis
Françoise Poirier
Louise Normandin
Cécile Vialaron
Monica Iliescu Nelea
Marie-Pascale Pomey
author_sort Christine Arsenault
collection DOAJ
description This study aims to assess family doctors' perceived needs for improved patient follow-up post-acute treatment in oncology departments, specifically focusing on the Patient Oriented Discharge Summary (PODS) for individuals living with cancer. A cross-sectional quantitative survey targeted family doctors, and a before/after exploratory study was conducted with patients to measure their needs pre- and post-PODS implementation. Twenty-one out of 42 family doctors participated in the survey (50%). Patient data was collected at three points in time: prior to PODS implementation (T1, n = 20/30; 77%), one month later (T2, n = 20/26; 77%), and six months later (T3, n = 21/28; 75%). Descriptive statistics were used for all inquiries. Results revealed that 52.24% of family doctors lacked information from oncology teams about patient treatments and their progress, while 90.48% received no guidance on monitoring patients for symptoms or necessary tests once treatment was completed, despite everyone expressing the desire to perform such monitoring. Family doctors recommended using standardized sheets with patient information (47%), details of side effects (41%), and post-treatment follow-up plans (12%). At T1, 60% of patients received the necessary information, at T2 95% and 81% at T3. Regarding instructions provided to family caregivers, satisfaction levels were 40% at T1, 90% at T2, and 62% at T3. The study underscores the imperative of enhancing communication between oncology specialists and family physicians, facilitating the latter's follow-up of patients completing acute treatment. It also highlights the need for patients to be adequately prepared for the transition through effective use and sustained use of PODS.
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spelling doaj-art-977221dba24a44e890723c90879daadf2025-01-08T20:18:38ZengThe Beryl InstitutePatient Experience Journal2372-02472024-08-0111210.35680/2372-0247.1941Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in CanadaChristine ArsenaultSaskia HazoutJohn CalogerinisFrançoise PoirierLouise NormandinCécile VialaronMonica Iliescu NeleaMarie-Pascale PomeyThis study aims to assess family doctors' perceived needs for improved patient follow-up post-acute treatment in oncology departments, specifically focusing on the Patient Oriented Discharge Summary (PODS) for individuals living with cancer. A cross-sectional quantitative survey targeted family doctors, and a before/after exploratory study was conducted with patients to measure their needs pre- and post-PODS implementation. Twenty-one out of 42 family doctors participated in the survey (50%). Patient data was collected at three points in time: prior to PODS implementation (T1, n = 20/30; 77%), one month later (T2, n = 20/26; 77%), and six months later (T3, n = 21/28; 75%). Descriptive statistics were used for all inquiries. Results revealed that 52.24% of family doctors lacked information from oncology teams about patient treatments and their progress, while 90.48% received no guidance on monitoring patients for symptoms or necessary tests once treatment was completed, despite everyone expressing the desire to perform such monitoring. Family doctors recommended using standardized sheets with patient information (47%), details of side effects (41%), and post-treatment follow-up plans (12%). At T1, 60% of patients received the necessary information, at T2 95% and 81% at T3. Regarding instructions provided to family caregivers, satisfaction levels were 40% at T1, 90% at T2, and 62% at T3. The study underscores the imperative of enhancing communication between oncology specialists and family physicians, facilitating the latter's follow-up of patients completing acute treatment. It also highlights the need for patients to be adequately prepared for the transition through effective use and sustained use of PODS.https://pxjournal.org/journal/vol11/iss2/9healthcareoncologypatient experiencequality of carepatient oriented discharge summarypeople living by cancerfamily doctors
spellingShingle Christine Arsenault
Saskia Hazout
John Calogerinis
Françoise Poirier
Louise Normandin
Cécile Vialaron
Monica Iliescu Nelea
Marie-Pascale Pomey
Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada
Patient Experience Journal
healthcare
oncology
patient experience
quality of care
patient oriented discharge summary
people living by cancer
family doctors
title Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada
title_full Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada
title_fullStr Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada
title_full_unstemmed Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada
title_short Accompanying People Affected by Cancer in Their Return to Life After Treatment: A Report on an Experiment Conducted in Canada
title_sort accompanying people affected by cancer in their return to life after treatment a report on an experiment conducted in canada
topic healthcare
oncology
patient experience
quality of care
patient oriented discharge summary
people living by cancer
family doctors
url https://pxjournal.org/journal/vol11/iss2/9
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