Let’s not Miss the Opportunity to Improve Rare Disease Reporting Through ICD-11 Implementation

Let’s not Miss the Opportunity to Improve Rare Disease Reporting Through ICD-11 Implementation

The identification of rare diseases in health data is crucial for their epidemiological definition. Beyond the existing terminology system ORPHAcodes, we describe the possibilities of the 11th revision of the International Classification of Diseases. We analyzed the linkages of ORPHAcodes to ICD-11...

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Bibliographic Details
Main Authors: Miroslav ZVOLSKÝ, Šárka DAŇKOVÁ, Marie VIKDAL, Carine ALSOKHN, Robert JAKOB, Milan BLAHA
Format: Article
Language:English
Published: Iuliu Hatieganu University of Medicine and Pharmacy, Cluj-Napoca 2024-11-01
Series:Applied Medical Informatics
Subjects:
Rare diseases
Classification
Terminology
Administrative data
Online Access:https://ami.info.umfcluj.ro/index.php/AMI/article/view/1075
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