Lived experiences of patients with epidermolysis bullosa: A rare genetic skin disease

Lived experiences of patients with epidermolysis bullosa: A rare genetic skin disease

Background: Epidermolysis bullosa (EB) is a rare genodermatosis that results in extreme skin fragility, for which there is no cure and may be fatal. The quality of life of patients affected may be greatly impacted. Aim: This study aims to understand the lived experiences of patients with EB. Setti...

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Bibliographic Details
Main Authors: Antoinette V. Chateau, David Blackbeard, Colleen Aldous, Ncoza Dlova, Cassidy-Mae Shaw
Format: Article
Language:Afrikaans
Published: AOSIS 2024-12-01
Series:Health SA Gesondheid: Journal of Interdisciplinary Health Sciences
Subjects:
epidermolysis bullosa
genetic skin disorder
patients
interpretative phenomenological analysis
impact
quality of life
needs
africa
Online Access:https://hsag.co.za/index.php/hsag/article/view/2824
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