Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO
Introduction: Sickle cell disease (SCD) is an inherited blood disorder affecting approximately 100,000 individuals in the U.S. A lack of knowledgeable providers, particularly for adult patients, has led to a significant number of adults without access to high-quality care. Several federal partners c...
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Elsevier
2025-02-01
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| Series: | AJPM Focus |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2773065424001226 |
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| author | Lisa M. Shook, DHPE, MA, MCHES Bailey House, MPH Christina Bennett Farrell, MPH Rosalyn Stewart, MD Sophie Lanzkron, MD, MHS Allison A. King, MD, MPH, PhD Taniya Varughese, MSOT J.J. Strouse, MD, PhD Marsha Treadwell, PhD Julie Kanter, MD |
| author_facet | Lisa M. Shook, DHPE, MA, MCHES Bailey House, MPH Christina Bennett Farrell, MPH Rosalyn Stewart, MD Sophie Lanzkron, MD, MHS Allison A. King, MD, MPH, PhD Taniya Varughese, MSOT J.J. Strouse, MD, PhD Marsha Treadwell, PhD Julie Kanter, MD |
| author_sort | Lisa M. Shook, DHPE, MA, MCHES |
| collection | DOAJ |
| description | Introduction: Sickle cell disease (SCD) is an inherited blood disorder affecting approximately 100,000 individuals in the U.S. A lack of knowledgeable providers, particularly for adult patients, has led to a significant number of adults without access to high-quality care. Several federal partners collaborated with the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) grantees to develop and test a national Project ECHO telementoring program targeting primary care providers (PCPs). Methods: Federal partners developed an extensive recruitment and outreach strategy to engage PCPs in the Sickle Cell Disease Training and Mentoring (STAMP) virtual educational (telementoring) program using a multi-pronged recruitment strategy. The SCDTDP grantees created a tailored curriculum of didactic presentations about the management of SCD, especially for PCPs. Results: STAMP hosted 12 sessions over 6 months. Despite the multi-pronged recruitment strategy and tailored curriculum, there were very few PCPs among the 763 attendees. The majority of attendees were hematologists and other community-based advocates with a vested interest in SCD. Conclusions: Despite a federal partnership, the STAMP outreach strategy was unsuccessful in recruiting PCPs to participate in a virtual telementoring education program designed to increase access to care for adults with SCD. STAMP's attendee participation and the lack of engagement by PCPs were unable to significantly show an increase in interest or willingness by PCPs to learn to co-manage SCD care with specialists. |
| format | Article |
| id | doaj-art-91ebc823a9574cb0a6932ee74cb3e4b3 |
| institution | Kabale University |
| issn | 2773-0654 |
| language | English |
| publishDate | 2025-02-01 |
| publisher | Elsevier |
| record_format | Article |
| series | AJPM Focus |
| spelling | doaj-art-91ebc823a9574cb0a6932ee74cb3e4b32025-01-05T04:28:53ZengElsevierAJPM Focus2773-06542025-02-0141100304Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHOLisa M. Shook, DHPE, MA, MCHES0Bailey House, MPH1Christina Bennett Farrell, MPH2Rosalyn Stewart, MD3Sophie Lanzkron, MD, MHS4Allison A. King, MD, MPH, PhD5Taniya Varughese, MSOT6J.J. Strouse, MD, PhD7Marsha Treadwell, PhD8Julie Kanter, MD9Department of Medicine, University of Cincinnati College of Medicine, Cincinnati, Ohio; Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Address correspondence to: Lisa M. Shook, DHPE, MA, MCHES, Division of Hematology, Cincinnati Children's Hospital Medical Center, 3333 Burnet Ave, MLC 7015, Cincinnati, Ohio, USADepartment of Medicine Johns Hopkins School of Medicine, Baltimore, MarylandDivision of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OhioDepartment of Medicine Johns Hopkins School of Medicine, Baltimore, MarylandDepartment of Medicine Johns Hopkins School of Medicine, Baltimore, MarylandDepartment of Pediatrics, Washington University School of Medicine, St Louis, MissouriDepartment of Pediatrics, Washington University School of Medicine, St Louis, MissouriDepartment of Pediatrics, Duke University, Durham, North CarolinaDepartment of Pediatrics, University of California, San Francisco, CaliforniaDepartment of Medicine, University of Alabama, Bermingham, AlabamaIntroduction: Sickle cell disease (SCD) is an inherited blood disorder affecting approximately 100,000 individuals in the U.S. A lack of knowledgeable providers, particularly for adult patients, has led to a significant number of adults without access to high-quality care. Several federal partners collaborated with the Sickle Cell Disease Treatment Demonstration Program (SCDTDP) grantees to develop and test a national Project ECHO telementoring program targeting primary care providers (PCPs). Methods: Federal partners developed an extensive recruitment and outreach strategy to engage PCPs in the Sickle Cell Disease Training and Mentoring (STAMP) virtual educational (telementoring) program using a multi-pronged recruitment strategy. The SCDTDP grantees created a tailored curriculum of didactic presentations about the management of SCD, especially for PCPs. Results: STAMP hosted 12 sessions over 6 months. Despite the multi-pronged recruitment strategy and tailored curriculum, there were very few PCPs among the 763 attendees. The majority of attendees were hematologists and other community-based advocates with a vested interest in SCD. Conclusions: Despite a federal partnership, the STAMP outreach strategy was unsuccessful in recruiting PCPs to participate in a virtual telementoring education program designed to increase access to care for adults with SCD. STAMP's attendee participation and the lack of engagement by PCPs were unable to significantly show an increase in interest or willingness by PCPs to learn to co-manage SCD care with specialists.http://www.sciencedirect.com/science/article/pii/S2773065424001226Sickle cell diseasecontinuing educationtelementoringchronic disease |
| spellingShingle | Lisa M. Shook, DHPE, MA, MCHES Bailey House, MPH Christina Bennett Farrell, MPH Rosalyn Stewart, MD Sophie Lanzkron, MD, MHS Allison A. King, MD, MPH, PhD Taniya Varughese, MSOT J.J. Strouse, MD, PhD Marsha Treadwell, PhD Julie Kanter, MD Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO AJPM Focus Sickle cell disease continuing education telementoring chronic disease |
| title | Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO |
| title_full | Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO |
| title_fullStr | Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO |
| title_full_unstemmed | Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO |
| title_short | Challenges of Engaging Primary Care Providers in Specialized Telementoring Education About Sickle Cell Disease for Sickle Cell Specialists: Results from the Sickle Cell Disease Training and Mentoring Program for Primary Care Providers (STAMP) Project ECHO |
| title_sort | challenges of engaging primary care providers in specialized telementoring education about sickle cell disease for sickle cell specialists results from the sickle cell disease training and mentoring program for primary care providers stamp project echo |
| topic | Sickle cell disease continuing education telementoring chronic disease |
| url | http://www.sciencedirect.com/science/article/pii/S2773065424001226 |
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