The transition from children to young people living with home mechanical ventilation
Purpose This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood to young adulthood in relation to everyday life, perceived health and transition into adult professional healthcare. Methods Nine young adults (three females and six...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2024-12-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
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| Online Access: | http://dx.doi.org/10.1080/17482631.2024.2399432 |
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| author | Åsa Israelsson-Skogsberg Andreas Palm Magnus Ekström Agneta Markström Berit Lindahl |
| author_facet | Åsa Israelsson-Skogsberg Andreas Palm Magnus Ekström Agneta Markström Berit Lindahl |
| author_sort | Åsa Israelsson-Skogsberg |
| collection | DOAJ |
| description | Purpose This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood to young adulthood in relation to everyday life, perceived health and transition into adult professional healthcare. Methods Nine young adults (three females and six males aged 18–31) were interviewed, and data was primary analysed using phenomenological hermeneutics. In the actual study, data was reworked using secondary analysis as described by Beck. Two interviewees were ventilated invasively and six non-invasively, and one was treated with continuous positive airway pressure (CPAP). Results The results are presented in two main categories. First; moving towards adulthood; and second, To handle changes in health and healthcare contacts. The study highlights the importance of ongoing social relations and being part of a socializing and physically active community. The transfer from paediatric to adult healthcare was solid and worked out well but was a process in which the participants struggled to find their own voice. Conclusions The transition into adulthood is a sensitive and challenging time for young people with HMV, but stable, close relationships and a well-organized transfer can enable this group to feel safe and able to find and use their own voice. |
| format | Article |
| id | doaj-art-8ade8e9eea3743e09a04818719b3ce70 |
| institution | Kabale University |
| issn | 1748-2623 1748-2631 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj-art-8ade8e9eea3743e09a04818719b3ce702024-12-13T15:19:03ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312024-12-0119110.1080/17482631.2024.23994322399432The transition from children to young people living with home mechanical ventilationÅsa Israelsson-Skogsberg0Andreas Palm1Magnus Ekström2Agneta Markström3Berit Lindahl4University of BoråsUppsala UniversityLund UniversityUppsala UniversityUniversity of BoråsPurpose This study aimed to examine how young people living with Home Mechanical Ventilation experience the transition from childhood to young adulthood in relation to everyday life, perceived health and transition into adult professional healthcare. Methods Nine young adults (three females and six males aged 18–31) were interviewed, and data was primary analysed using phenomenological hermeneutics. In the actual study, data was reworked using secondary analysis as described by Beck. Two interviewees were ventilated invasively and six non-invasively, and one was treated with continuous positive airway pressure (CPAP). Results The results are presented in two main categories. First; moving towards adulthood; and second, To handle changes in health and healthcare contacts. The study highlights the importance of ongoing social relations and being part of a socializing and physically active community. The transfer from paediatric to adult healthcare was solid and worked out well but was a process in which the participants struggled to find their own voice. Conclusions The transition into adulthood is a sensitive and challenging time for young people with HMV, but stable, close relationships and a well-organized transfer can enable this group to feel safe and able to find and use their own voice.http://dx.doi.org/10.1080/17482631.2024.2399432home mechanical ventilationhealthlong-term mechanical ventilationneuromuscular diseasesecondary qualitative analysistransitionyoung people |
| spellingShingle | Åsa Israelsson-Skogsberg Andreas Palm Magnus Ekström Agneta Markström Berit Lindahl The transition from children to young people living with home mechanical ventilation International Journal of Qualitative Studies on Health & Well-Being home mechanical ventilation health long-term mechanical ventilation neuromuscular disease secondary qualitative analysis transition young people |
| title | The transition from children to young people living with home mechanical ventilation |
| title_full | The transition from children to young people living with home mechanical ventilation |
| title_fullStr | The transition from children to young people living with home mechanical ventilation |
| title_full_unstemmed | The transition from children to young people living with home mechanical ventilation |
| title_short | The transition from children to young people living with home mechanical ventilation |
| title_sort | transition from children to young people living with home mechanical ventilation |
| topic | home mechanical ventilation health long-term mechanical ventilation neuromuscular disease secondary qualitative analysis transition young people |
| url | http://dx.doi.org/10.1080/17482631.2024.2399432 |
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