Development and validation of the Iranian Minimum Data Set for Epidermolysis Bullosa: A mixed method approach.

Development and validation of the Iranian Minimum Data Set for Epidermolysis Bullosa: A mixed method approach.

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Minimum Data Set (MDS) enables integration in data collection, uniform data reporting, and data exchange across clinical and research information systems. The current study was conducted to determine a comprehensive national MDS for the Epidermolysis Bullosa (EB) information management system in Ira...

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Bibliographic Details
Main Authors: Somayeh Paydar, Shahrbanoo Pahlevanynejad, Farkhondeh Asadi, Hamideh Ehtesham, Azam Sabahi
Format: Article
Language:English
Published: Public Library of Science (PLoS) 2025-01-01
Series:PLoS ONE
Online Access:https://doi.org/10.1371/journal.pone.0316791
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