Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles
Abstract Introduction Ensuring adequate representation and the active, meaningful and visible involvement of groups likely to be most impacted by research findings and/or the lack of research inquiry are increasingly acknowledged. This is particularly relevant for Black racially minoritised groups w...
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| Format: | Article |
| Language: | English |
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Wiley
2024-02-01
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| Series: | Health Expectations |
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| Online Access: | https://doi.org/10.1111/hex.13892 |
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| _version_ | 1849227373249036288 |
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| author | Juliana Onwumere Anthony Gentle Rachel Obanubi Annette Davis Moffat Karuga Rubbia Ali BeFine Study Team Valentina Cardi |
| author_facet | Juliana Onwumere Anthony Gentle Rachel Obanubi Annette Davis Moffat Karuga Rubbia Ali BeFine Study Team Valentina Cardi |
| author_sort | Juliana Onwumere |
| collection | DOAJ |
| description | Abstract Introduction Ensuring adequate representation and the active, meaningful and visible involvement of groups likely to be most impacted by research findings and/or the lack of research inquiry are increasingly acknowledged. This is particularly relevant for Black racially minoritised groups who are less visible as research participants and in patient and public involvement and engagement (PPIE) roles. Our viewpoint article sought to discuss reflections and insights on their involvement experience, with particular attention to perceived barriers and enablers to PPIE involvement. Methods Qualitative data were collected as part of facilitated group discussions from nine Black racially minoritised experts‐by‐experience involved in a PPIE advisory group. Data were subjected to thematic analysis to identify key themes. Results Five main themes were identified that reflected factors linked to practicalities: role unfamiliarity, benefits for the larger community, acknowledgement of previous harm and mental health stigma. Conclusion Given the existence and importance of the direct links between research and service and treatment innovations in health and social care, ensuring that those from underrepresented Black racial communities are meaningfully and equitably supported to have roles in advising and influencing research programmes should be prioritised and an ongoing consideration for different stakeholders, including research funders, researchers, healthcare providers and community leaders/representatives. Patient or Public Contribution This viewpoint article is a collaboration between lived experience stakeholders and researchers, comprising conceiving the original idea for the paper, its conceptualisation and data generation and the coproduction including editing of the manuscript. |
| format | Article |
| id | doaj-art-83da3f00eab84324a9e89ef5b4076de7 |
| institution | Kabale University |
| issn | 1369-6513 1369-7625 |
| language | English |
| publishDate | 2024-02-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj-art-83da3f00eab84324a9e89ef5b4076de72025-08-23T11:53:04ZengWileyHealth Expectations1369-65131369-76252024-02-01271n/an/a10.1111/hex.13892Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory rolesJuliana Onwumere0Anthony GentleRachel ObanubiAnnette DavisMoffat KarugaRubbia Ali1BeFine Study TeamValentina Cardi2Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UKDepartment of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience King's College London London UKDepartment of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience King's College London London UKAbstract Introduction Ensuring adequate representation and the active, meaningful and visible involvement of groups likely to be most impacted by research findings and/or the lack of research inquiry are increasingly acknowledged. This is particularly relevant for Black racially minoritised groups who are less visible as research participants and in patient and public involvement and engagement (PPIE) roles. Our viewpoint article sought to discuss reflections and insights on their involvement experience, with particular attention to perceived barriers and enablers to PPIE involvement. Methods Qualitative data were collected as part of facilitated group discussions from nine Black racially minoritised experts‐by‐experience involved in a PPIE advisory group. Data were subjected to thematic analysis to identify key themes. Results Five main themes were identified that reflected factors linked to practicalities: role unfamiliarity, benefits for the larger community, acknowledgement of previous harm and mental health stigma. Conclusion Given the existence and importance of the direct links between research and service and treatment innovations in health and social care, ensuring that those from underrepresented Black racial communities are meaningfully and equitably supported to have roles in advising and influencing research programmes should be prioritised and an ongoing consideration for different stakeholders, including research funders, researchers, healthcare providers and community leaders/representatives. Patient or Public Contribution This viewpoint article is a collaboration between lived experience stakeholders and researchers, comprising conceiving the original idea for the paper, its conceptualisation and data generation and the coproduction including editing of the manuscript.https://doi.org/10.1111/hex.13892Blackhealth researchpatient and public involvement and engagement |
| spellingShingle | Juliana Onwumere Anthony Gentle Rachel Obanubi Annette Davis Moffat Karuga Rubbia Ali BeFine Study Team Valentina Cardi Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles Health Expectations Black health research patient and public involvement and engagement |
| title | Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles |
| title_full | Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles |
| title_fullStr | Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles |
| title_full_unstemmed | Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles |
| title_short | Amplifying the voices of Black racial minorities in mental health research through public involvement and engagement: The importance of advisory roles |
| title_sort | amplifying the voices of black racial minorities in mental health research through public involvement and engagement the importance of advisory roles |
| topic | Black health research patient and public involvement and engagement |
| url | https://doi.org/10.1111/hex.13892 |
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