Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey
Background Research suggests that those caring for a loved one with an eating disorder in the UK report unmet needs and highlight areas for improvement. More research is needed to understand these experiences on a wider, national scale. Aims To disseminate a national survey for adults who had expe...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2025-01-01
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| Series: | BJPsych Open |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2056472424008123/type/journal_article |
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| author | Hannah Cribben Rachel Batchelor Pamela Macdonald Janet Treasure Erica Cini Dasha Nicholls Carol Kan |
| author_facet | Hannah Cribben Rachel Batchelor Pamela Macdonald Janet Treasure Erica Cini Dasha Nicholls Carol Kan |
| author_sort | Hannah Cribben |
| collection | DOAJ |
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Background
Research suggests that those caring for a loved one with an eating disorder in the UK report unmet needs and highlight areas for improvement. More research is needed to understand these experiences on a wider, national scale.
Aims
To disseminate a national survey for adults who had experience caring for a loved one with an eating disorder in the UK, informed by the findings of a smaller scale, qualitative study with parents, siblings and partners in the UK.
Method
A cross-sectional web-based survey was disseminated to adults who had experience caring for a loved one with an eating disorder in the UK.
Results
A total of 360 participants completed the survey. Participants described experiences of care received in both children and young people's, and adult services. Those receiving care from children and young people's services generally reported more timely care, greater involvement in care and more confidence managing their loved one's symptoms post-discharge. In both settings, participants identified a number of areas for improvement, including more timely access to care, improved transition processes and discharge planning, and increased involvement in their loved one's care.
Conclusions
This survey captures the experiences of individuals caring for a loved one with an eating disorder in the UK. There are identified discrepancies between experiences of care in children and young people services compared with adult services. Clinical implications and recommendations for improvement are discussed, including improved transition and discharge processes, increased involvement of and/or support for carers themselves, and more timely access to support services for the unwell individual.
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| format | Article |
| id | doaj-art-7f6de4226dcb4a99a1cae47d7d5386a6 |
| institution | Kabale University |
| issn | 2056-4724 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | BJPsych Open |
| spelling | doaj-art-7f6de4226dcb4a99a1cae47d7d5386a62025-01-17T08:17:57ZengCambridge University PressBJPsych Open2056-47242025-01-011110.1192/bjo.2024.812Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national surveyHannah Cribben0https://orcid.org/0000-0001-6810-8251Rachel Batchelor1https://orcid.org/0000-0002-0426-2388Pamela Macdonald2Janet Treasure3Erica Cini4https://orcid.org/0000-0003-0999-2379Dasha Nicholls5https://orcid.org/0000-0001-7257-6605Carol Kan6Centre for Research in Eating and Weight Disorders, Institute of Psychiatry, Psychology & Neuroscience, King's College London, UKOxford Institute of Clinical Psychology Training and Research, University of Oxford, UKCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, Psychology & Neuroscience, King's College London, UKCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, Psychology & Neuroscience, King's College London, UKEast London Eating Disorder Service for Children and Young People, East London NHS Foundation Trust, UKDivision of Psychiatry, Imperial College London, UKCentre for Research in Eating and Weight Disorders, Institute of Psychiatry, Psychology & Neuroscience, King's College London, UK; and Vincent Square Eating Disorder Service, Central and North West London NHS Foundation Trust, UK Background Research suggests that those caring for a loved one with an eating disorder in the UK report unmet needs and highlight areas for improvement. More research is needed to understand these experiences on a wider, national scale. Aims To disseminate a national survey for adults who had experience caring for a loved one with an eating disorder in the UK, informed by the findings of a smaller scale, qualitative study with parents, siblings and partners in the UK. Method A cross-sectional web-based survey was disseminated to adults who had experience caring for a loved one with an eating disorder in the UK. Results A total of 360 participants completed the survey. Participants described experiences of care received in both children and young people's, and adult services. Those receiving care from children and young people's services generally reported more timely care, greater involvement in care and more confidence managing their loved one's symptoms post-discharge. In both settings, participants identified a number of areas for improvement, including more timely access to care, improved transition processes and discharge planning, and increased involvement in their loved one's care. Conclusions This survey captures the experiences of individuals caring for a loved one with an eating disorder in the UK. There are identified discrepancies between experiences of care in children and young people services compared with adult services. Clinical implications and recommendations for improvement are discussed, including improved transition and discharge processes, increased involvement of and/or support for carers themselves, and more timely access to support services for the unwell individual. https://www.cambridge.org/core/product/identifier/S2056472424008123/type/journal_articleFeeding or eating disordersanorexia nervosabulimia nervosacarerspatients |
| spellingShingle | Hannah Cribben Rachel Batchelor Pamela Macdonald Janet Treasure Erica Cini Dasha Nicholls Carol Kan Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey BJPsych Open Feeding or eating disorders anorexia nervosa bulimia nervosa carers patients |
| title | Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey |
| title_full | Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey |
| title_fullStr | Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey |
| title_full_unstemmed | Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey |
| title_short | Experiences of eating disorder services for people caring for a loved one with an eating disorder in the UK: national survey |
| title_sort | experiences of eating disorder services for people caring for a loved one with an eating disorder in the uk national survey |
| topic | Feeding or eating disorders anorexia nervosa bulimia nervosa carers patients |
| url | https://www.cambridge.org/core/product/identifier/S2056472424008123/type/journal_article |
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